Epilepsy

Waiting To Be Heard

“Stand upright, speak thy thoughts, declare The truth thou hast, that all may share; Be bold, proclaim it everywhere: They only live who dare.” Voltaire 

I am Tiffany Kairos. Born to a single hard-working mother and an alcohol addicted father (May he rest in peace). Bullied relentlessly in school, accepted only by a few of my peers. Growing up, we did all we could just to get by. Far from wealthy and always a chilling breath away from poverty’s grasp. I was always the shy soft spoken girl with spurts of bravery and adventure here and there as I have always had a zest for life. I always found most ease out of the spotlight, blending in where I could.

As I grew up and grew older, I came out of my shell more and more. More adventurous, braver, curious and self confident. Financial circumstances of course remained the same. Far from wealthy and always a chilling breath away from poverty’s grasp. All that I ever earned, I earned from hard work. In my opinion, that’s the way it should be. You learn to appreciate life’s rewards with much more joy and pride within yourself. The way that I was raised and continue to live always was assured to keep me humble.

When I was diagnosed with Epilepsy in 2008, my husband and I lost nearly everything we owned. Including the very home we lived in. The chilling grasp of poverty’s hand clutched around us to welcome us. It was indeed a very cold and heart-breaking time period to experience. As much as it hurt, I appreciated the venture as we made our way through. It taught us many lessons of how it is to live a different financial platform and how differently you look at life as a whole. Making our way back as I recovered, we were and still remain far from wealthy and the chill reminds me, that old familiar friend. Wealthiness is not a platform I desire by any means. If the Lord wants us there, we will be there. Where we are now, God has blessed us immensely making us rich in many beautifully different ways.

I became the founder and administrator of my very own Epilepsy Awareness Organization not long after my diagnosis. I timidly took center stage to advocate for a condition that I was diagnosed with along with 65 million others around the world and to tell of my personal journey. As adventurous, brave, curious, and self-confident as I had become, from time to time that little girl, shy and soft spoken would attempt to introduce herself back into my life. I was having to learn how to silence this part of me and embrace a new me that I had become. A new me that was calling out to be heard and acknowledged. Soon, people began to discover who I was. Learning my name and what I was known for. It was an unfamiliar delight. Something that I wasn’t used to. Something that brought a smile to my face. I began getting to know people from around the world who I discovered were on the same journey of Epilepsy just like me in one way or another. Gladly I advocate, educate and share my personal journey with Epilepsy. It is my blessing in disguise. I discovered more friends than I ever had in my entire lifetime. I discovered confidence I never knew that I had. I found inner strength to rise above what a lot of people would crumble under. In an odd sense, it was like I had achieved a super power of sorts. An ailment with a silver lining of super powers. Strange, I know. HaHa.

I never knew what life held in store for me growing up. One girl, one shy little girl. Not known by many and blending in within her home town. Not rich. Not poor. Just getting by. Eventually becoming diagnosed with Epilepsy with dreams of changing the world in all the “Purple” kind of ways. Blessed by The Lord, I’ve made great strides in my efforts. Rallying communities and cities alike, advocating alongside other great organizations, bloggers and more. This goes to show with enough determination and heart, that you can achieve anything you want to achieve.

As time presses on and my confidence grows, I continue to strive for dreams in the name of Epilepsy. I hope to one day meet some of the great people I’ve come to know along the journey. I hope to one day have the opportunity to speak on a public platform. Whether it be on the news, radio or a small stage, whenever the time is right, I hope when I call, hearts and minds will open and my voice will be heard. For some, its easier to be heard. In some instances, it comes down to a matter of who you know and/or your financial/career status. If you’re blessed enough to be on that platform, you can make so much of what you want happen in the snap of a finger. I prefer the challenge of hard work and building my voice to be heard. I love when stones have the confidence of mountains, so to speak. Average every day people doing extraordinary things to change the world. This is who I am and I am rich in a beautifully different sense. Blessed with friends, family, self-confidence ignited by the love of God. If you want to change the world, then take the first step and change the world. I’m making great strides so far and I pray to be heard on even bigger levels as time goes on. I have a condition called Epilepsy that affects millions and this condition deserves its story to be told. I’m on a lifelong mission to advocate in the name of.  I’ve seen this condition’s story be told on the news, in newspapers, in documentaries and more and I hope one day I will be given the opportunity to be there too. It may not be today, it may not be tomorrow or any time yet soon. Until days like these arrive, I absolutely love all that I am doing right now along the way.

I am so thankful and blessed beyond my understanding. Its something that I will never stop doing so long as I live and breathe. The men women and children diagnosed deserve to be heard. This condition deserves its chance in the spotlight for the entire world to behold and learn more about. Determination fuels me and I know that I am ready. I am ready to take the next step and take Epilepsy Awareness to brand new platforms and possibilities. As I trek this journey and do all that is in my power, I continue to wait for my voice to be heard by more and more people willing to listen. To give a chance. To step up to the challenge and pave ways to opportunities.

Praying, life, carry my voice to all corners of the world in the name of Epilepsy Awareness!

tobeheard

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

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