To Understand What Is Misunderstood: Unmet Needs In Epilepsy Community

“Be kind, for everyone you meet is fighting a hard battle.”

In partnership with the Epilepsy Foundation, Eisai sponsored a national survey among those living with epilepsy and their caregivers to identify and help address the unmet needs of the epilepsy community. Eisai Inc. is a U.S. pharmaceutical company that discovers, develops, and markets products throughout the world. Eisai’s commitment to innovative solutions in disease prevention, treatment, and care for the health and well-being of people worldwide is embodied in their human health care (hhc) mission. Their goal is to give their first thoughts to patients and their families and helping to increase the benefits health care provides.

The survey found that:

believe the public is unaware about how many people are affected by epilepsy


believe there is a stigma associated with epilepsy; this may be caused by the lack of understanding associated with the condition
In line with our human health care (hhc) mission and commitment to advancing epilepsy care for patients and caregivers, Eisai plans to use these findings to help guide the development of future programs that will help better serve the needs of this community.

The Methodology:

The national survey was conducted by Wakefield Research among 250 epilepsy patients and 250 caregivers ages 18+ between March 28th and April 14th, 2014, using an e-mail invitation and online survey. Among the respondents, 54% were female and 46% were male, with 43% under the age of 40 and 57% age 40 or older. The average age of people with epilepsy or persons cared for was 36 years.

Unmet Needs Survey Static Infographic 8.18.14_final flat approved


Unmet NeedsSurvey Fact Sheet_8.15.14_final flat approved_Page_1


Upon reading this survey it is clearly evident to see that epilepsy better awareness and education is very much needed within our country and globally to break down the stigma that still exists surrounding this condition today.

Thank you to Eisai for bringing this to the epilepsy communities attention! If you would like more information, visit www.advancingepilepsycare.com

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!


  • Anjie

    Tank you for inspiring me to think positive. Please allow me to share some of your thoughts. I am starting an epilepsy campaign here in our country because people seemed to judge people like us. More power.

    • tkairos

      Anjie –
      I’m very happy that this blog has helped inspire you! 🙂 How wonderful that you’re starting an epilepsy campaign! I look forward to hearing more about it!

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