When I had become diagnosed with epilepsy, as we were just making great strides in our adventure of married life, it knocked the both of us, my husband and I, down pretty hard. Knocking the wind out of us both unexpectedly. Each of us affected in our own individual ways.
In attempting to come to terms with what was happening inside of my body, what was happening inside of my brain, at times, I found myself to be confused and even short fused unintentionally. The beginning is always the hardest part of the journey.
My husband though he could not experience it first hand, did all in his power to reassure me that he would be by my side, learning all there was to know about this condition along with me in order to get better and that if he could, he would take my place, even though I absolutely wouldn’t allow that last statement, haha!
Through good days and bad, epilepsy of course will affect couples and families in their own individual ways. Medication changes, medication side effects, set backs, seizures, perhaps financially and more. What is important is to always have an open line of communication with one another. To view each other’s journey from each other’s shoes. If compelled, ask one another, “Can you tell me what is it like to be in your shoes?” Listen intently. Close out all distractions. Cell phones. Televisions. Computers. Give you and that person one-on-one time.
In doing so, you will find a stronger connection with the person living with epilepsy. I know that I have, with my husband and my family over the course of time. My husband and family have felt more open and comfortable to ask questions to better understand what it is that I go through on a daily basis which in turn helps me to understand what it is they go through and could be thinking too.
A diagnosis is a journey and a journey doesn’t have to be traveled alone. It is a team effort. Learn from and with one another and you will discover the journey becomes easier to travel with every step you take.
I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!