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  • Epilepsy,  Uncategorized

    How to Protect Your Mental Health While Living with Epilepsy

    What Is Mental Health? Mental health includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate to others, and make choices. Having epilepsy can have a…

    By Tiffany Kairos February 15, 2020

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♡ Because I’m Alive ♡ ▪ ▪ When I’ve re ♡ Because I’m Alive ♡ ▪ ▪ When I’ve revealed that I have epilepsy to family, friends and strangers with a soft smile on my face, some are perplexed wondering how in the world that could be? ▪ ▪ Vulnerability Moment ‪► It wasn’t always that way. I wasn’t always the girl with the smile on her face. You see, researchers concluded that 30-35% of people with epilepsy also experience depression. That was me at the beginning of my journey. ▪ ▪ I cried more tears than I ever knew that I had. My soul ached. I could feel my heart break. It was a long trek to get out of that wreck. Every single step forward was a march of perseverance and defiance. I would not let my condition destroy me. ▪ ▪ Even in the rubble you can find gems. Even in our struggle we can smile and be thankful that we are alive! ▪ ▪ Epilepsy loses every single time that we smile. So...smile with me today. ▪ ▪ Comment a 🙂 because it is a powerful and beautiful weapon against epilepsy. ▪ ▪ I love you. ♥
✩ Shine So Bright ✩ ▪ ▪ It felt like all t ✩ Shine So Bright ✩ ▪ ▪ It felt like all the light in the world had abandoned me when I was diagnosed with epilepsy. I was terrified. I just wanted to curl into a ball and cry until my eyes were dry. There weren’t enough “Why’s” in the universe to help me comprehend what was happening. But I knew I had two options. ▪ ▪ Stay in that spot and stare into darkness forever never knowing if I would find answers or a path meant for me or take a deep breath and one step at a time, explore that darkness. ▪ ▪ Sure I was terrified. Sure I felt a lot of things but at least I was doing something about it rather nothing at all. And it was because of that courage, I discovered the light that I carried all along. Waiting for me to break the chains of fear and doubt. ▪ ▪ I discovered the path I was meant to take, I discovered my mission, and my passion. ▪ ▪ Sometimes, we discover exactly what we need and where to go by being courageous and walking in the dark. ▪ ▪ Comment a ✨ because you are a light that this world needs! ▪ ▪ I love you. ♥
✩ Showtime ✩ ▪ ▪ TONIGHT is the night we’ve all been waiting for! ▪ ▪ The 9th Annual WEGO Health Awards Ceremony - 7PM EST ▪ ▪ Celebrating the top patient leaders of the online community! ▪ ▪ I have been chosen as a FINALIST in the “PATIENT LEADER HERO” category! ▪ ▪ I'm one of six finalists for WEGO Health's 2020 "Patient Leader Hero" Award. ▪ ▪ This is definitely a pinch me moment! I am truly honored and humbled by everyone who believe in me and my advocacy works and helped get me to this moment right here. I cannot articulate how much your love and support means to me! ▪ ▪ Win or lose, it is an honor to be representing the Epilepsy Community in this years awards! This is for YOU! ▪ ▪ I love you. ♥
❉ This Fix ❉ ▪ ▪ Living with a chronic ill ❉ This Fix ❉ ▪ ▪ Living with a chronic illness is no way in the park. As a matter of fact, it’s a bit like walking on a rocky road. Sometimes stubbing your toe. ▪ ▪ It’s not something we anticipated, asked for or desire for our lives but it’s here. It’s a 24/7 fight. From the time the sun wakes up until it says goodnight. ▪ ▪ Most believe the line is drawn at a physical struggle but if you look closely, our chronic illness tests us emotionally too. We have to do everything in our power and are so thankful for the support around us to hold our heads up and keep our eyes fixed on all of the good that life has to offer despite what we’re up against. ▪ ▪ If fear, doubt, any toxic words try to enter your world, fix your thinking to erase inaccuracies. ▪ ▪ Yes, we have a chronic illness but we are also resilient, courageous and brave! Think this and know this every single day. ▪ ▪ I love you. ♥
✩ Today Kicks Off The HLTH VRTL Event! ✩ ▪ ▪ I am one excited WEGO Health Awards Finalist! 😃 ▪ ▪ What an amazing week this is going to be. An event that will empower and unify though we are apart! ▪ ▪ Congratulations to the talented and inspiring Patient Leaders that I am nominated with. It’s an honor and privilege to be recognized with them. ▪ ▪ I’m ecstatic to be attending and representing The Epilepsy Community at the @hlthevent which is the largest health conference in the US, that involves patient voices! ▪ ▪ I hope to establish network connections and raise the bar in my advocacy skills in order to strengthen my advocacy works for my community! ▪ ▪ Join in this Thursday along with @wegohealth as part of @hlthevent to celebrate Patient Leaders near and far!
♡ Every Step Is Strength Gained ♡ ▪ ▪ Life ♡ Every Step Is Strength Gained ♡ ▪ ▪ Life is not a race, it’s a journey and though we may have challenges to face, it is a gift that should be savored and cherished each step of the way. Enjoy it, and experience it. ▪ ▪ It doesn’t matter how slowly you go, as long as you don’t stop. ▪ ▪ Every step is strength gained, every move is knowledge earned. Keep going. ▪ ▪ I love you. ♥
✩ Honored To Be A Finalist ✩ ▪ ▪ We are le ✩ Honored To Be A Finalist ✩ ▪ ▪ We are less that a week away from the #WEGOHealthAwards! I am over-the-moon happy and honored to be a finalist for a WEGO Health Award for “Patient Leader Hero”. I cannot articulate how meaningful and touching that is to me. ▪ ▪ I’ve lived with epilepsy for over a decade. I’ve faced many challenges along the way. Fought my way through setbacks, heartaches and heartbreaks. Who knew an unexpected, unpleasant circumstance would reveal the path I was meant to take and shape me into the woman that I am today? ▪ ▪ The Epilepsy Community, The Chronic Illness Community as a whole are my heroes. Your strength, bravery and perseverance are inspiring. You are the reason that I do what I do. ▪ ▪ As Patient Leaders and advocates, together we are stronger, our voices are louder, and together we can accomplish so much! ▪ ▪ 📌REMINDER: The WEGO Health Awards will be announced October 15th at 7pm. ▪ ▪ Whether I win or lose, I’m thrilled to have been a part of such an empowering event alongside many talented Patient Leaders! ▪ ▪ Thank you WEGO Health for all that you do to support Patient Leaders and their endeavors!
♡ You Are Tough Stuff ♡ ▪ ▪ I think that w ♡ You Are Tough Stuff ♡ ▪ ▪ I think that we can all agree, it would be marvelous if our chronic illness would take a hike. But it’s here. We battle this unexpected and unwelcome change in our lives. ▪ ▪ How we respond to challenges, disappointments, and setbacks is 100% in our control. Let’s search for the opportunities to learn, grow, and change. ▪ ▪ We are tough stuff while epilepsy is unequivocally weak. Let’s beat epilepsy with a positive and optimistic outlook each day. ▪ ▪ I love you. ♥
♡ Let A Smile Be Your Medicine ♡ ▪ ▪ Often ♡ Let A Smile Be Your Medicine ♡ ▪ ▪ Oftentimes people are perplexed when I reveal that I have epilepsy with a calm demeanor and a smile on my face. ▪ ▪ How does someone who has a chronic illness not fret? Why aren’t tears falling? Why isn’t their head hanging? ▪ ▪ Years of going and growing. I have had countless opportunities to pick up a white flag and wave QUIT in the midst of difficult circumstances and believe me, it’s tempting but never will I let epilepsy take the reigns of my life. ▪ ▪ Living with a chronic illness is an every day battle, and I’m not just talking physically. Emotionally and spiritually too. It’s the hardest task I’ve ever had to do. ▪ ▪ At the very same time, I’m learning so much. I’m learning how to search for reasons to smile. From grandest to even the littlest. It’s medicinal. ▪ ▪ These reasons remind me just how precious life is and how thankful I am to be alive despite having epilepsy. ▪ ▪ So, yes. Though I have epilepsy I smile because there are a million and one reasons to. ▪ ▪ What are 3 things that make you smile? ▪ ▪ I love you. ♥
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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