The Epilepsy Journey
Random Article
Search
  • Home
  • About Tiffany
  • Epilepsy
  • Media
  • Contact
  • Home
  • About Tiffany
  • Epilepsy
  • Media
  • Contact
  • Epilepsy,  Uncategorized

    How to Protect Your Mental Health While Living with Epilepsy

    What Is Mental Health? Mental health includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate to others, and make choices. Having epilepsy can have a…

    By Tiffany Kairos February 15, 2020

Instagram

✵ LET OPTIMISM LEAD ✵ ▪ ▪ When the sky see ✵ LET OPTIMISM LEAD ✵ ▪ ▪ When the sky seems to fall, it may just be that rain coming to clear your vision and water your soul. ▪ ▪ The feeling that encompasses you when you’re diagnosed with a chronic illness, I believe no word strong enough exists. For me, time seemed to slow, and I began to question dream from reality. Pinching myself. Ouch! Not a dream. ▪ ▪ To lift a smile in such a circumstance was difficult. Accepting that I would be journeying with epilepsy and so many uncertainties was heavy in the beginning. We all face this with our chronic illness journey, I’m certain. ▪ ▪ I sat in the rain and let my tears mix with raindrops for a time but there came a time where I said enough was enough. ▪ ▪ Guess what? I’m alive. And I’m thankful. I can speak and I can use this voice to help others like me. Optimism and gratitude became my fuel for my journey and continues to be every day. ▪ ▪ I encourage each one of you to fuel up with the same. Steal the power back and don’t let epilepsy have the reigns. It’s your life. Your beautiful, wonderful, incredible life. Let optimism lead. ▪ ▪ Comment a “🔥” to add that fuel of optimism and gratitude to your journey! ▪ ▪ I love you. ♥
✩ YOU’VE GOT A FRIEND IN ME! ✩ ▪ ▪ There ✩ YOU’VE GOT A FRIEND IN ME! ✩ ▪ ▪ There’s nothing like having a good friend to be with us along our journey. To let us know that they care and support us. That nothing will alter our relationship despite our circumstances but stay true. Stay strong. Perhaps even grow stronger. ▪ ▪ When I was diagnosed with epilepsy, my life changed drastically. I had to make changes for the betterment of my health. To avoid seizures. In an attempt to stop my seizures all together. I hoped that the friends that I had would understand and support me. Instead of fearing seizures, (which if they did, I would’ve understood because it’s hard to grasp the thought of someone having a seizure and not knowing what to do.) ask me questions...learn about them...anything. ▪ ▪ As time marched on, one by one, I watched as friends began to fade away. “Busy today”...Not answering phone calls or texts. It was clear as day obvious that I was a liability or a burden in their eyes. ▪ ▪ I lost all of my friends. Abandoned me along my journey. Something that I would never do to anyone. Has this happened to you at any point in your journey? ▪ ▪ As painful as it was, as I began my advocacy journey, I met several others affected by epilepsy in many different capacities. Parents of, siblings of, those like me, doctors and nurses even. And I continue to meet so many nationwide and globally. Some of who have become the greatest of friends. In culmination, like extended family. Who love, care and support and allow me to do the same in return. Friends who see me as I am and instead of run away, run closer. We all need friends like this. ▪ ▪ Anyone who becomes aware of your condition and fades away, were never truly friends in the first place. Don’t let your heart be troubled because there are still beautiful, wonderful, true people in this world that you can be sure of who will always be in your corner and support you all the way. To be your light as you fight this dark side called epilepsy. ▪ ▪ Thank you my dear friends who journey with me with your love, care and support. It means more to me than you could know. ▪ ▪ Tag a friend who has been one of your biggest supporters! ▪ ▪ I love you. ♥
♡ BEAUTY HASN’T ABANDONED YOU ♡ ▪ ▪ I re ♡ BEAUTY HASN’T ABANDONED YOU ♡ ▪ ▪ I remember feeling betrayed… and neglected…as if all the colors of the world had drained away when I was diagnosed with epilepsy. I felt the world shrink so small…believing there was nothing left to revere at all. Boy was I ever wrong. ▪ ▪ All of these feelings and emotions are normal and perfectly okay for someone who has just had their entire lives uprooted and flipped. No one should ever expect you to be jolly straight away. ▪ ▪ It took time. Time is a great healer and revealer of direction. It can heal the wounds we’ve inherited and leave us with lessons to make us stronger moving forward. ▪ ▪ A world I thought was colorless and shrunken was in fact vibrant and vast. Full of opportunity still awaiting me. Just because I have epilepsy, it doesn’t mean it’s the end of my story. ▪ ▪ Friends, I want you to do this with me. Wherever you are at this moment, pause. Take notice of 5 things you can see, 4 things you can hear, 3 things you can feel, 2 things you can smell, and 1 thing you can taste. ▪ ▪ Beauty has NOT abandoned you. It dwells in and around us in many ways. Let’s remember this as we go throughout our days! Put this exercise into practice often. Regardless of the fact that chronic illness is in our lives, WE have the win. It’s OUR lives. We WILL thrive! ▪ ▪ Comment “🌹” to signify the reminder that beauty has NOT abandoned you! ▪ ▪ I love you. ♥
✵ TRUST WHAT WAITS ✵ ▪ ▪ I carried my drea ✵ TRUST WHAT WAITS ✵ ▪ ▪ I carried my dreams since I was a teeny tiny little thing. When I got married to the live of my life, like a puzzle I wanted to put together the future with my husband. ▪ ▪ A home. Children. An enormous flowerbed and so much more. We couldn’t have known epilepsy was going to enter the picture and put so much of that on pause. ▪ ▪ Though my heart ached for a time, I knew I had to lift my eyes and keep moving forward. No, it’s not what we planned, not what we wanted, but this journey promised and continues to reveal a life to be lived. ▪ ▪ Comment a 💜” to signify that your faith is strong despite epilepsy. ▪ ▪ I love you. ♥
❉ ARISE STRONG SOULS ❉ ▪ ▪ The sufferings ❉ ARISE STRONG SOULS ❉ ▪ ▪ The sufferings that I have walked through along my journey with epilepsy have not shattered my soul but instead strengthened it. ▪ ▪ I have felt. Felt emotions so deeply. But it’s in the hurt, sadness, anger, frustration, faith, hope...that I grow. Seared with the scars of my sufferings and too relentless to quit, I grow. I will not be defeated by something I did not ask for and something that’s goal is to steal my smile and joy in my heart. ▪ ▪ Comment a “🔥” to signify that you REFUSE to be defeated! ▪ ▪ I love you. ♥
♡ CHRONIC ILLNESS REFLECTION ♡ ▪ ▪ Tranqui ♡ CHRONIC ILLNESS REFLECTION ♡ ▪ ▪ Tranquility and patience. Two essential elements of wisdom that I have obtained over my 10+ years living with epilepsy and seizures. I have several and unexpected complex partial seizures just about every day and once in a blue moon a tonic-clonic will pay a visit. I’d be lying if I said that I don’t get upset sometimes. I do. It can get frustrating. How many of you living with epilepsy or with any chronic illness get frustrated from time-to-time? ▪ ▪ Though I can’t control these unruly seizures, I can however control my reaction. Though I’m not perfect and I know I never will be, I have learned a lot living with epilepsy. I patiently wait counting it out when I seize and I envision a beautiful place in this world I’d love to be until it dissipates. A beautiful island, a breathtaking mountain, a lush green valley with the most colorful sunset... ▪ ▪ No matter what, it’s me who has the power. Even if I seize, I come out of it still with a smile. I have faith in a cure one day, some day. Until then, I will continue to persevere with an optimistic spirit. ▪ ▪ Comment a “💪🏼” to signify that YOU are in control of your reaction and epilepsy does not! ▪ ▪ I love you. ♥
◈ WITH FLYING COLORS ◈ ▪ ▪ Tested in every ◈ WITH FLYING COLORS ◈ ▪ ▪ Tested in every which way. It’s exhausting. Frustrating. It pokes at my hope and mocks my faith. ▪ ▪ I didn’t ask for my epilepsy. I didn’t know the trouble I’d face. It encourages me to get comfortable in shadows and surrender all that I am and all that I could ever be. ▪ ▪ Sorry, not sorry to disappoint but I dance in the sunlight and reach for my goals. Pursue all of my dreams. In my troubles, grew strength and courage to overcome. ▪ ▪ I’d say I passed with flying colors! 😉 ▪ ▪ Comment a “🔥” to signify that you choose to defy your diagnosis! ▪ ▪ I love you. ♥
♡YOUR VOICE CAN CHANGE THE WORLD♡ ▪ ▪ It t ♡YOUR VOICE CAN CHANGE THE WORLD♡ ▪ ▪ It took me what felt like a long time, to find my voice following my diagnosis. To face the challenges set before me and the journey that I would be taking, but once I’d found it, I was embraced with confidence and determination. I would not be silenced. ▪ ▪ I have a story to tell, I want the world to understand this condition that barged into my life. That affects not only me, but the love of my life and family. That intimidates those on the journey to remain silent like I did. ▪ ▪ I raise my voice so that not only can epilepsy fully understand that I am filled with courage, but so that those on the journey can be heard. ▪ ▪ Comment a “🔥” to lift up your voice fearlessly! ▪ ▪ I love you. ♥
♡ WE GROW AS WE GO ♡ ▪ ▪ Living with epile ♡ WE GROW AS WE GO ♡ ▪ ▪ Living with epilepsy is one of the greatest challenges that I have ever faced. As daunting and sometimes frustrating it can be, this condition has strengthened me and grown me into the woman I am today. ▪ ▪ Thousands upon thousands of seizures... countless tests and multiple hospital stays...setbacks comebacks and more setbacks...even the loss of the hair on my head....I refuse to give up. I will continue to raise awareness and hold onto that faith for a cure. I am fearlessly fighting epilepsy every single day of my life. ▪ ▪ This is my life. And I love it. Perfectly imperfect. ▪ ▪ I love you. ♥
Follow on Instagram

Twitter

Tweets by @TiffanyKairos

Trending Tags

Advocate Awareness brain fog Condition Coronavirus Diagnosis Epilepsy Family fitness Friend Gifts God Independence Intimacy Life Love Marriage Medication Mental Health Motherhood Pregnancy Seizure Symptoms Trigger

Recent Blogs

  • 5 HELPFUL TIPS FOR TRAVELING WITH EPILEPSY
  • A Letter To Myself The Day After My Epilepsy Diagnosis
  • 7 THINGS NOT TO FEEL GUILTY ABOUT LIVING WITH EPILEPSY
  • 5 Things Those Living With Epilepsy Want You To Know
  • Setting Boundaries With Epilepsy – What You Need To Know

Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

2021 © The Epilepsy Journey | Bard Theme by WP Royal.
Back to top