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  • Awareness,  Epilepsy,  Personal

    Understanding Brain Fog And Epilepsy

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog is more than just the occasional forgetfulness. We all experience…

    By Tiffany Kairos August 31, 2020

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✩ Patient Leader Hero - FINALIST ✩ ▪ ▪ Che ✩ Patient Leader Hero - FINALIST ✩ ▪ ▪ Check out this fun package that arrived in the mail from @wegohealth! 💌 ▪ ▪ I am honored and heart-happy to have been chosen as “Patient Leader Hero” Finalist in this years WEGO Health Awards! ▪ ▪ Thank you for believing in me, my works as an advocate and voting! ▪ ▪ Those within the epilepsy community are my heroes and I value your love and support beyond measure! ▪ ▪ Winners will be announced on October 14th! ▪ ▪ I hope to bring home the win for the epilepsy community and expand awareness! ▪ ▪ Congratulations to all Finalists! 👏🏼👏🏼👏🏼
✵ Have Compassion ✵ ▪ ▪ I fight a battle e ✵ Have Compassion ✵ ▪ ▪ I fight a battle each day that most couldn’t understand. Not just on a physical level, but emotionally and mentally too. ▪ ▪ I contend with seizures. An invisible beast. A relentless storm. ▪ ▪ I’ve had to modify my lifestyle to ensure that I’m safe and can live a fulfilling and worthwhile life. ▪ ▪ It’s not always easy to ask for help. It’s not always easy to be strong. But what we need is the compassion of others who aren’t in the shoes that we’re in. To see our struggles, see us, and allow us to see your love and your care. ▪ ▪ I’m not superhuman. I’m human. I need a good cry sometimes. I hesitate asking for help sometimes. I get frustrated sometimes but your patience and compassion is medicine. ▪ ▪ Compassion is medicine. ▪ ▪ I love you. 🌹
♡Let’s Talk About Invisible Illnesses♡ ▪ ▪ “Invisible illnesses” is a catch-all term for a wide range of health conditions, including mental illnesses, diabetes, fibromyalgia, epilepsy, autoimmune disorders and many more. ▪ ▪ Many who are up against a chronic illness are also up against stigma, discrimination and misconceptions. ▪ ▪ On multiple occasions throughout my 10+ years living with epilepsy, the authenticity of my illness has been called into question. Accusing me of faking my seizures. ▪ ▪ I have heard such remarks as ‪► “If you’re so ill, how could you possibly be so active?” “Why aren’t you in a bed?” “You don’t look ill.” “Why don’t you work a regular job?” ▪ ▪ It’s important to understand that some people with chronic illnesses face invisible obstacles and may look completely healthy on the outside. ▪ ▪ Just about every day, multiple times a day, I have complex partial seizures. The vision blurs in my right eye. I get nauseous. I get pressure in my head. I can’t do anything for 5-10 seconds. ▪ ▪ On a good day, I may have 5-10 complex partial seizures. On a bad day, I may have 20 or more. You would never know unless I said something or you paid close attention to my behavior. ▪ ▪ I put forth a strong effort to live a fulfilling and worthwhile life. I refuse to allow epilepsy to hold me back from that. ▪ ▪ This is just one very important facet of why I am so passionate about sharing my story, raising awareness of epilepsy and supporting others in their chronic illness communities. ▪ ▪ Don’t judge a book by its cover. Show compassion. Listen. Just because you can’t see a persons illness, doesn’t mean they’re not fighting a battle inside. ▪ ▪ Comment a ⚡️ my Invisible Warriors! ▪ ▪ I love you.
✩ Where We’re Meant To Be ✩ ▪ ▪ We all h ✩ Where We’re Meant To Be ✩ ▪ ▪ We all have experienced unexpected events in our lives. Some of us are impacted in much greater ways. ▪ ▪ Take for instance, an illness. In my case - my epilepsy diagnosis. ▪ ▪ It hit me like a gust of wind, knocking me off my feet. I didn’t see that coming. Then again, how could I? ▪ ▪ Sometimes, we think we have our lives completely mapped out and we know what’s best for us. Then just like that, we don’t. ▪ ▪ There are times we have to get lost to find the direction we are meant to go. To the place we were meant to be. ▪ ▪ Unpredictability can be a good thing. Putting us to the test. A test of faith. Courage. Strength. So much I’ve learned along this new direction that I journey. ▪ ▪ What positive things have you learned along your journey so far? ▪ ▪ Comment a 🔥 declaring your strength and resiliency! ▪ ▪ I love you.
✩ Brain Fog & Epilepsy ✩ ▪ ▪ Speaking cand ✩ Brain Fog & Epilepsy ✩ ▪ ▪ Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. ▪ ▪ I enjoyed writing this article because it opened up a conversation with several others who understand. Who can relate. Who agree. ▪ ▪ Turns out, not much is mentioned about brain fog and epilepsy but can those living with epilepsy experience it? Yes. ▪ ▪ Click the link in my BIO to read this article! 🧠
✵ Inner Strength ✵ ▪ ▪ Every day is a day ✵ Inner Strength ✵ ▪ ▪ Every day is a day of putting forth effort to grow stronger. Even more so if you are facing a challenge - in my case, epilepsy. ▪ ▪ My life is no longer as it used to be. It changed completely once that doctor diagnosed me. ▪ ▪ I had to adapt and make sacrifices for the betterment of my health. It wasn’t an easy transition and it took time to accept this new path I’d been directed to journey. ▪ ▪ Every day I’m faced with things that remind me of life prior. I’m put to the test. Will I fail and collapse into tears or will I smile and acknowledge how beautiful that moment in time was? ▪ ▪ There are days that I’m faced with h things that for the moment I cannot have or cannot do. I’m put to the test. Will I let anger, and resentment boil within me? Or will I acknowledge how beautiful such opportunities are and have faith someday that could be me? ▪ ▪ The goal is to grow so strong on the inside because living with epilepsy, every day you’re out to the test and your response matters. ▪ ▪ Don’t allow epilepsy the win. Don’t give it permission to break your heart or whisper lies. You are so much stronger. Know it and own it. ▪ ▪ Comment a 🙌🏼 my beautifully strong friends! ▪ ▪ I love you.
♡ Be Your Own Cheerleader ♡ ▪ ▪ It is so e ♡ Be Your Own Cheerleader ♡ ▪ ▪ It is so easy to turn on ourselves and say negative things. To tear ourselves down for who we are (or aren’t) because we are battling a chronic illness. Or the decisions we’ve made or goals we are pursuing which at the end of the day, can cause us to see ourselves as unworthy or flawed. ▪ ▪ You are enough, you are worthy, and you are loved. Embrace your flaws and celebrate who you are. ▪ ▪ I have epilepsy. I have flaws. I’m imperfect. I could knock myself down a peg or two but I refuse. ▪ ▪ Just as I have, remember this motto: I’m perfectly imperfect and that’s perfect. ▪ ▪ Comment a ❤️ and tag 3 people to let them know that they are WORTHY ENOUGH & LOVED! ▪ ▪ Love you. ♥
❉ Like A Resilient Flower ❉ ▪ ▪ When I was ❉ Like A Resilient Flower ❉ ▪ ▪ When I was diagnosed with epilepsy, I felt like a gigantic wind rushed and knocked me on my feet. It broke me. When something like that happens, it catches us all off guard and gives our emotions a 1-2 punch. ▪ ▪ I felt like a flower snapped from the stalk. I didn’t know what the future held for me. But it didn’t stop me from moving forward. ▪ ▪ Thing is, even though I felt broken and I didn’t know where I was going, I felt compelled to look forward and not stay stagnant. ▪ ▪ Every step we take, we are rejuvenating. One step at a time. At our pace. I am so grateful for slow and steady growth. ▪ ▪ I have learned so much and defied the binds that my condition attempts to place on my life. ▪ ▪ Whatever the future holds, I’m going to keep smiling. I’m ready!
✵ Let’s Look Out For One Another ✵ ▪ ▪ A ✵ Let’s Look Out For One Another ✵ ▪ ▪ A loving reminder! Please wear a mask to keep people safe. Even if we find ourselves feeling safe from the virus, there are others who don’t feel safe and are experiencing bouts of stress and anxiety. ▪ ▪ Wearing a mask helps to reduce these difficult emotions, shows others that we care and most importantly fight the spread of the coronavirus. ▪ ▪ Recently the top Doctor in Ohio has said “I need you to wear both the cape and the mask, now -- you're definitely a masked crusader -- to help protect each other. It's beautiful weather and I need you to understand we're fighting for lives now trying to cure stuff like this." ▪ ▪ I turn to you and ask because we cannot be certain who is battling a chronic illness, whether young or old. By wearing a mask, we are doing our part in keeping them safe. ▪ ▪ Masks come in all styles and types. Some are created by organizations who give back to charity! ▪ ▪ Thank you to @society6 for this beautifully custom made Watercolor Flowers face mask! ▪ ▪ Society6 has over 1,000 incredible styles (It was hard to choose just one!) all of which come with artwork from independent artists. ▪ ▪ As an added bonus, a portion of all proceeds go to @wckitchen coronavirus relief efforts! ▪ ▪ Thank you Society6 and all of the amazing artists for your stylish masks, the time you devote, and for donating to such an empowering cause. #ShareMySociety6 ▪ ▪ Comment a 💜 because we look out for one another!
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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