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  • Epilepsy,  Personal

    What Epilepsy Reminds Me

    Over a decade. It has been a long journey and within this journey, I have learned so much, experienced so much, wrestled so many emotions, have had the opportunity to forge so many long lasting friendships with others who too…

    By Tiffany Kairos January 29, 2020
  • Awareness,  Epilepsy

    6 Ugly Sides of Epilepsy Most People Don’t Like Talking About

    It’s no secret that having a chronic illness sucks. There are sides to having epilepsy that are ugly or not well studied, and many people don’t know about them at all. Yes, there are still myths – and I’m not…

    By Tiffany Kairos January 7, 2020
  • Epilepsy,  Personal

    8 Essentials In My Epilepsy Survival Kit

    Living with epilepsy can be taxing not only on the body but also the mind and spirit. Finding the right things to make the journey less rigorous is therapeutic. What works for you might not work for someone else but…

    By Tiffany Kairos December 12, 2019
  • Epilepsy,  Personal

    5 Ways I Improve My Memory While Living With Epilepsy

    “Memory loss is like system reboot.” Memory hindrances. A topic that I’ve discussed lightly over the course of my journey with epilepsy. Is it a mere coincidence or has my memory declined due to the years of seizures and medication?…

    By Tiffany Kairos October 8, 2019
  • Epilepsy,  Marriage,  Personal

    Breaking the Ice on Intimacy and Epilepsy

    Yep, I’m going there. That awkward, not-often talked about subject coupled with epilepsy. When epilepsy and seizures decide to kill the mood for intimacy in a relationship. Sometimes we might feel self-conscious of our bodies, our emotions, or a deep…

    By Tiffany Kairos September 25, 2019
  • Awareness,  Epilepsy

    The Road Doesn’t End Here

    One of the most difficult challenges since my diagnosis with epilepsy is finding reliable means of transportation. Sure. I have my husband and members of family who extend their willingness to help me get to and from where I want…

    By Tiffany Kairos September 18, 2019
  • Epilepsy,  Personal

    Secondary Epilepsy

    “Because I love you, because I care for you, because I know what you endure… you will never endure alone.” – Chris Kairos December 11, 2008, what seemed like a normal day, while at work, I received a call that…

    By Tiffany Kairos August 31, 2019
  • Awareness,  Epilepsy

    How to Beat the Heat Living with Epilepsy

    “‘Cause a little bit of summer is what the whole year is all about.” – John Mayer What do you think of when you hear the word “summer”? Vacation, flip-flops, the beach, napping all afternoon in the hammock, fresh squeezed…

    By Tiffany Kairos August 6, 2019
  • Awareness,  Epilepsy

    What NOT To Do When Living With Epilepsy

    Living with epilepsy, I often reflect on new and different ways to embrace the reality of my condition. Over the course of a decade, I’ve pursued and pocketed different suggestions for what to do, whether it be a new medication…

    By Tiffany Kairos May 28, 2019
  • Epilepsy

    Life With Epilepsy In Public

    “Do you know where you are?” “Can you tell me who the President is?”   These are examples of questions I have been asked when I find myself uncomfortably lying on the floor in a public area. My brain is…

    By Tiffany Kairos April 7, 2019
  • Epilepsy

    How To Love Yourself Despite Epilepsy

    When epilepsy enters into your life, it can take a massive shot at your self-esteem. You’re not able to do certain things you once could do, you’ve got to rely on others for help, the medications that you take have…

    By Tiffany Kairos March 1, 2019
  • Epilepsy

    5 Things That Help Me During A Seizure Setback

    In the ten years that I have lived with epilepsy and experienced seizures, I can’t tell you just how many seizures have pained me, drained me, and unplugged me from every day activities. Below, I’m going to share with you…

    By Tiffany Kairos January 30, 2019
  • Epilepsy

    Epilepsy & That Time Of The Month

    Yep. I’m going there. That awkward, not-often talked about subject coupled with epilepsy. First thing’s first. That time of the month sucks. An unwelcome guest that barges in and makes itself home every month, with us ladies. Sometimes we feel…

    By Tiffany Kairos September 16, 2018
  • Epilepsy

    10 Things I Don’t Do While Living With Epilepsy

    Out of the corner of my eye, I see the minutes pass by, I flip the calendar to a brand new month, watching the seasons change. Leaves fall and dance in the wind, followed by snowflakes slowly floating to the…

    By Tiffany Kairos August 28, 2018
  • Epilepsy

    4 Things People With Epilepsy Want You To Know

    Epilepsy can intrude into anyone’s life, at any time. Millions of men, women and children battle this selfish and rather challenging condition every single day. All of us diagnosed are on the same journey with different stories to tell. Pages…

    By Tiffany Kairos August 1, 2018
  • Epilepsy

    5 Things To Remember When Being A Spouse With Epilepsy

    The Epilepsy Condition Living with epilepsy and learning to manage the condition is not only challenging, it can be overwhelming at times. The trials that we face can range from living a chaotic life, living with uncertainty as to the…

    By Tiffany Kairos June 5, 2018
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Instagram

✵ Does Your Night Stand Look Like Mine? ✵ ▪ ✵ Does Your Night Stand Look Like Mine? ✵
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How many of my chronic illness crusaders have a night stand that also serves as a makeshift pharmacy?
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Medications and other items that can help manage or ease our illnesses.
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Besides medication, what is on your nightstand to help you with your chronic illness?
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Comment 💊to signify that your night stand also serves as a pharmacy!
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I love you. ♥
♡ I’m proud of you ♡ ▪ ▪ Going from day- ♡ I’m proud of you ♡
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Going from day-to-day contending with a chronic illness is no easy feat. The difficulties and challenges faced can be daunting. It’s quite easy to allow yourself to fall apart but standing strong, holding yourself together despite the heavy winds and bumpy roads, refusing to give up is the single most important weapon that you have in your arsenal.
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I am proud of you for defying your illness. I am proud of you for fighting through this. You are warriors. You are inspirations. Be proud of yourselves today too.
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Comment 🔥 to signify that you refuse to give up!
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I love you. ♥
✵ You Are Your Greatest Advocate ✵ ▪ ▪ An ✵ You Are Your Greatest Advocate ✵
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An advocate is someone who helps us speak up so that our voices are heard, our rights are understood and our problems are resolved.
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Not only is it ideal to have an advocate on our side as we take this journey living with chronic illness, but it’s essential to remember that WE are our greatest advocates! 
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We’ve got to fight for ourselves. We are strong enough to overcome anything that we come up against. If guilt comes knocking, don’t answer the door. You are allowed to do what you need to do to heal and keep your boundaries firm without beating yourself up.
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Comment 💪🏼 to signify you are your greatest advocate!
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I love you. ♥
❀ When You Don’t Know What To Say ❀ ▪ ▪ ❀ When You Don’t Know What To Say ❀
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Oftentimes, family and friends want to lend a helping hand but don’t know what to say or do.
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Does a chronic illness come with an instruction manual for those that we love? Unfortunately not.
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When you don’t know what to say, sometimes you don’t need to say anything, just be there, be here beside me. 
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Your presence alone is the greatest gift you can give. It is helpful and comfortable.
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Thank you to those who go out of their way to show that they care.
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TAG someone to who has been a gift in your life!
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I love you! ♥
✩ Hey There Warrior ✩ ▪ ▪ People oftentime ✩ Hey There Warrior ✩
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People oftentimes ask me how I maintain a positive outlook after having lived with epilepsy for over a decade. Enduring tests, handfuls of pills that don’t always quiet my seizures, emotional rollercoaster rides, being housebound and more. 
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I won’t sugarcoat it. It takes a bunch of time and work. But it’s so worth it because of the strength and perseverance gained. Investing in yourself is the best form of self care possible. 
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Remind yourself of what you’ve been able to overcome. All the times you felt like you weren’t going to make it through, you proved yourself wrong. You’re more powerful than you think. 
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Comment ⚡️ to signify that you are indeed a warrior!
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I love you. ♥
✵ Take Your Time The Right Way ✵ ▪ ▪ Live ✵ Take Your Time The Right Way ✵
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Live your life by a compass not a clock. It doesn’t matter how fast you’re going, as long as you’re taking steps into the right direction. You’ll be encouraged and empowered at how far you’ve come when you look back after all the work you’ve put in!
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I applaud you and I’m with you in this fight! Know that you are a beacon of light!
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I love you. ♥
✵ Rockin’ Epilepsy Apparel ✵ ▪ ▪ I love ✵ Rockin’ Epilepsy Apparel ✵
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I love fun mail! Look what just showed up. Stop by @epilepsyshop and check out their epilepsy apparel. 🛍
✵ Hats Off To Your Self Respect ✵ ▪ ▪ Do y ✵ Hats Off To Your Self Respect ✵
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Do you ever find yourself feeling guilty for taking time for yourself? Feeling bad for backing out or canceling plans when you just aren’t feeling your best?
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Have you ever had anyone shame you or blame you? Call you selfish or cause you to feel as though the world revolves around you? 
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Guess what? Self care is not self indulgence. As a matter of fact, self care is self respect. You’re showing yourself that your health matters. That you want to invest in you so that you can invest in others and other activities too. 
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So don’t for a moment feel heavy hearted for caring for yourself. It’s not selfish at all. I applaud it. I applaud you.
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Comment 💯 to signify that you stand behind self care as self respect! 
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I love you. ♥
♡ Loving Reminder ♡ ▪ ▪ Do you use positiv ♡ Loving Reminder ♡
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Do you use positive self-talk along your journey with epilepsy or whichever chronic illness you may be battling right now?
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Do you use positive self talk to get you motivated or avoid getting “beat up” by your own self-criticism?
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Living with a chronic illness isn’t easy. We come up against many challenges and obstacles. But we have to remember that negative self talk is almost always self defeating and we must treat ourselves like we would treat the person that we love the most.
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Tell me ONE thing that you celebrate each day?
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I’ll start - I celebrate not getting upset even if I’ve experienced a seizure.
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I love you. ♥
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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