When I was diagnosed with epilepsy, my whole world that my husband and I had begun to build together crumbled like a finely crafted sandcastle. I watched as our hopes and our dreams sifted through our fingers. Our home, my car, my job, nearly everything disappeared. Yet, even so we clung on to each other and family rallied around us too. Lifting us up and restoring our hope and our faith. All while God paved the way forward. Not a one of us knew what lie ahead. We simply knew whatever ahead, we would make it together.
Times were tough. Tough for all of us. Seizures rushed in, knocked me down. Repeatedly. Occasionally. Unexpectedly. Exhausting me, exhausting my husband, my family. Plenty of white flags all around for the taking yet I did not want to take hold.
Along the journey there will always be white flags for the taking. They will be as common as dandelions in an open field, however vigilance is a must not to take hold.
Yet, I knew I had to keep fighting. That I could not allow this condition to get the better of me. To defeat me. Life continues on. The sun still rises and sets. Every day. Was I going to lie down and declare my life finished when I felt the will and determination within me to continue on? No.
I made a decision within myself and to my family that I would learn all that I could about the very condition that challenged me. Epilepsy. That whatever I must do and not do fight back, I would. If epilepsy wanted a fight, it picked one determined person. As Tom Petty says:
“Gonna stand my ground and I won’t back down!”
Along my journey with epilepsy, I had discovered that there is no cure for epilepsy. In hearing this statement, there are a variety of options in which I could have felt about that. I could have been depressed, angry, frustrated, or even hopeless. However, upon hearing this statement, sure I felt a twinge of all of these feelings which was instantly replaced with hope, faith, inspiration, determination, refusal to give up. I was not going to take “NO” for an answer. In this fight, along this journey, I will never take “NO” for an answer.
Here is a list of ways to have hope when they say there’s no cure.
Pray or Meditate
Prayer and meditation brings us closer to God. This offers us peace, relief from stress and anxiety, comfort and hope. Allowing us to lie down our fears and worries to The Lord.
Become involved in local or online epilepsy organizations that you’re passionate about. Sign petitions, join epilepsy walks, meet other like-minded people. Begin a blog or your own organization!
Knowledge is power! Learn all that you can about the condition that challenges you and/or the person that you know. Education is the best weapon in the fight for positive change.
There are plenty of people near and far that could use your time, funds, expertise, or products. You may not have to look any further than your own community or family! If you can help at least one persons life to be a bit easier, you are making a tremendous impact. Guaranteed you’ll feel great doing it!
Surround Yourself In Gratitude
Pause a moment. Reflect on five things that you’re truly grateful for in this moment. Take moments in your day to pause and reflect on at least 5 people or things that you are truly grateful for. Some peoples’ situations are more challenging than what we are facing in this moment.
Focus On The Positive
Don’t allow the words “I have epilepsy” to overshadow all of the beauty and potential that there is in this world. Spend time each day reflecting on all that is positive and good within your life, within your family, within your community and even the world! Take a look at those who have risen above tragedies and misfortune. Overcome adversity and stigmas. Not only have they survived but they have thrived in the face of challenge. They are inspiring and motivating people every single day. Have faith, always have faith. There is hope.
I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!