Getting Along With Epilepsy


Once you’ve become diagnosed with epilepsy, your entire life begins to change. When I had become diagnosed with epilepsy, my life essentially fell apart. It was like watching a rock slide happening before my very eyes. That’s the crazy thing about rock slides. When you witness one, sometimes, you see objects, cars, houses, animals, even people moving along with it. Not knowing what to do, nor where to go, being crushed and crumbled. Baffled and confused. Unable to do anything about the current situation they’re in.  That might be what’s happening  to people psychologically when they become diagnosed with epilepsy. It’s because of this, you’ve  got to learn how to live with your epilepsy diagnosis.

When Dealing With The Guilt Of Epilepsy

Isn’t it comical how most often, when we get handed down news we don’t want to hear, news we didn’t expect, we end up taking it right out onto ourselves?  It typically goes a little something like this “This is all my fault, I’ve brought this all on me.” I used to drink with friends and wasn’t the healthiest of eaters either. So of course when I became diagnosed with epilepsy I thought, “Oh no, This is clearly my fault. My unhealthy lifestyle  brought me right here to this very moment.” I felt extremely guilty, as if somehow I’d done something so wrong because I had just been diagnosed with epilepsy. As time passed, I began to look at people around me, thinking, “That person doesn’t have epilepsy, but I do.” My thoughts would swirl. What had I done that “that person” didn’t do? After a good amount of time, I realized I mustn’t look at my situation in such a way. Without a doubt, there is nothing to be downcast or ashamed of in regards to my epilepsy.

You’ve got to calm yourself, take a seat,  give yourself the “It’s not your fault. It’s going to be okay.” bear hug. it will make a big difference, that I promise you!

Time To Make Changes

I’ve been on this epilepsy journey now almost 7 years and throughout these years, I have made a few changes within my lifestyle to battle back against epilepsy. I wouldn’t say that these changes are too drastic, however, I do my best to pay more attention to what I’m putting into my body and what is going on in the world around me.

I’ve cut caffeine mostly if not completely out of my life as I have noticed it is a major seizure trigger within my life. If you want to join in on giving caffeine the boot, Health.com has a great article on 12 Surprising Sources Of Caffeine 

I pay close attention to my body. Health issues are an issue in my family unfortunately. Strokes and diabetes with my grandparents, and now epilepsy squarely with me. I am not taking any chances with my health. The power  to help or hurt my body is on me. I want to be a positive example of change in my family and that begins by just doing.

I’m the type of person that questions everything. Almost 7 years in and we are still on the hunt for the cause of my epilepsy. We may discover it, we may not ever. I’m more interested in putting a stop to it and for good. As of now, I find myself questioning many a things such as food ingredients, event lighting, etc. and I pay much more attention to medicine side effects as an extra precaution.

When You Live With Concern

The conversation revolving around epilepsy is quickly changing and people are becoming more aware. Yes there are still stigmas in existence, however, there aren’t the same stigmas that there once were, thank God. When you find yourself diagnosed with epilepsy, you’ll most likely sit back and ask “Alright, now what’s next?” and it will occur to you that you must take on a higher level of uncertainty than you ever have.

You have nothing to worry about though! The road you’re on begins a journey. Whatever you do, don’t give up and don’t let go. You’ll learn so much about what’s happening so you won’t be confused or lost.

How has your journey with epilepsy changed your lifestyle? What tips would you recommend to help others get along with epilepsy?

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

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