Epilepsy

Dear Kimhekim: We Are Not Attention Seekers, We Are Awareness Enhancers

Fashion designer Maison Kimhekim from South Korea felt it presentable at Paris Fashion Week to showcase a collection titled “Attention Seeker” with models and donning IV’s and plain white t-shirts with bold black letters across the chest spelling the word “SICK”.

As an epilepsy survivor of over 10 years, experiencing seizures multiple times a day, every day… Some that are noticed and some that go unnoticed, this is completely and utterly tasteless, vile and offensive. Coupled with their behavior since receiving immense backlash from the chronic illness/disabled community. No apology or response.

Epilepsy has nearly cost me my life on multiple occasions. I thank God every day for a new day to live. Because of my countless seizures a day, I’ve made the decision to be a stay-at-home wife. I’m not financially fabulous and couldn’t afford this trash you call fashion.

Maison, if you think disability/chronic illness is chic/trendy/fashionable I feel tremendously sad for your train of thought.

Constant blood draws, IV’s, non-invasive and even invasive electrodes. This is just a scratch into my journey. It is not trendy. It is a mission to STOP my seizures and I’m on a mission to HELP others understand the condition and those on the same journey.

Pause a moment and reflect. If you could walk a mile in any one of the millions of people living with a chronic illness’s shoes, would you find it trendy to walk with an IV in your hand? How about when you have solitary moment of peace from your chronic illness and you celebrate by doing something fun only to be harassed by someone labeling you as an attention seeker? Would you feel like seeking attention when all you can seek is a pillow after a seizure and tissues to wipe away tears wishing that they would stop long enough to let you have a fun time with family and friends? Tell me, in your mind, would you think it’s seeking attention to swallow your guilt to ask for help?

Illness is not a fashion statement. Let me repeat…ILLNESS IS NOT A FASHION STATEMENT.

Shame on you. If illness were to ever come knocking at your door, and I would never wish it upon anyone, there wouldn’t be an ounce of this style clothing to be found.

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

One Comment

  • Tiffany Andrews

    When I read this, I had a few choice words to say about this Maison Kimhekim person but I am a Christian woman so I am not going to go there. Anyway, I am epileptic and I found it highly offensive and disrespectful to say the least. I don’t like being the center of attention regardless of if I had seizures or not but the fact that she said and believes that is disgusting. I hate having to depend on someone to take me to different places and even when I am out with my family or even by myself, I am still scared that I could have an episode. I don’t understand why people think that people who are disabled or chronically ill would want attention. The devil in me would have slapped the crap out of her but the Christian in me wants to pray for her. I just hope and pray that she never gets sick or any of her loved ones get sick.

    It’s ignorant and stupid people like that who make us feel like we choose to be disable/chronically ill when we really never wanted to be like this. If anybody is an “attention-seeker” is her. We really don’t need to give her that shine.

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