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  • Epilepsy,  Personal

    How I Exercise While Living With Epilepsy | Plus What You Need To Know Before Hitting The Gym

    This is a topic that many people have reached out to me in regards to and as someone who avidly takes part in exercise, I find it beneficial and very important to break it down to get the greatest information…

    By Tiffany Kairos September 30, 2020
  • Awareness,  Epilepsy,  Personal

    Understanding Brain Fog And Epilepsy

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog is more than just the occasional forgetfulness. We all experience…

    By Tiffany Kairos August 31, 2020
  • Epilepsy,  Personal

    10 Most Common Questions People Ask Me About Epilepsy

    Over the many years of living with epilepsy, I’ve received a lot of questions about my condition, understandably. Some come up more often than others. Here are 10 of the most common questions I’ve been asked:  Does it hurt? It…

    By Tiffany Kairos July 19, 2020
  • Epilepsy,  Personal

    When They Say “I Don’t Know How You Do It” Living with Epilepsy

    Living with epilepsy is not a walk in the park. It’s a daily challenge. Not only physically, but emotionally and spiritually. The condition stretches you to your breaking point, like a rubber band creaking in readiness to snap. Those who…

    By Tiffany Kairos June 17, 2020
  • Epilepsy,  Personal

    How I Upcycle Epilepsy In My Life

    “If you give up, you’ll have an attitude of resignation, of defeat that will affect—and infect—the rest of your life. Acceptance is empowering because it’s a choice you’ve made. Even if the outcome isn’t what you hoped for, you’re saying,…

    By Tiffany Kairos May 28, 2020
  • Epilepsy,  Personal

    Epilepsy And The Dream Of Motherhood

    I’d always wanted to be a mother. At the age of nine on my birthday, I didn’t ask for barbies or make-up. I didn’t ask for glittery toys, no. Instead I asked only for a baby name book so that…

    By Tiffany Kairos May 9, 2020
  • Epilepsy,  Personal

    You Don’t Look Like You Have Epilepsy

    I live with Epilepsy. I have lived with this condition for over a decade. I was diagnosed with this condition in 2008. Four short months after marrying my husband. I had one previous seizure at the age of 16 yet…

    By Tiffany Kairos April 24, 2020
  • Epilepsy,  Personal

    How I Navigate My Epilepsy Self-Care During Coronavirus

    Self-care is an important component of all-around wellness when you have a chronic illness. For example, epilepsy. But suppose an unanticipated situation shakes up your everyday self-care routine. How do you navigate that? Over the last decade I’ve learned to…

    By Tiffany Kairos March 27, 2020
  • Epilepsy,  Personal

    Don’t Feel Sorry For Me Because I Have Epilepsy

    It’s never easy when someone that you know or someone that you love has just been diagnosed with a chronic illness. What can you say to show that you care about them and the challenges they must face? Oftentimes, it…

    By Tiffany Kairos February 7, 2020
  • Epilepsy,  Personal

    How I Practice Self-Renewal While Living With Epilepsy

    What is self-renewal? In reflecting on this, it’s looking at life anew, or maybe even sewing the seeds of things that you’ve been meaning to do for a while. Self-renewal is all about reinvigorating yourself, refreshing your life and taking…

    By Tiffany Kairos February 3, 2020
  • Epilepsy,  Personal

    What Epilepsy Reminds Me

    Over a decade. It has been a long journey and within this journey, I have learned so much, experienced so much, wrestled so many emotions, have had the opportunity to forge so many long lasting friendships with others who too…

    By Tiffany Kairos January 29, 2020
  • Epilepsy,  Personal

    8 Essentials In My Epilepsy Survival Kit

    Living with epilepsy can be taxing not only on the body but also the mind and spirit. Finding the right things to make the journey less rigorous is therapeutic. What works for you might not work for someone else but…

    By Tiffany Kairos December 12, 2019
  • Epilepsy,  Personal

    5 Ways I Improve My Memory While Living With Epilepsy

    “Memory loss is like system reboot.” Memory hindrances. A topic that I’ve discussed lightly over the course of my journey with epilepsy. Is it a mere coincidence or has my memory declined due to the years of seizures and medication?…

    By Tiffany Kairos October 8, 2019
  • Epilepsy,  Marriage,  Personal

    Breaking the Ice on Intimacy and Epilepsy

    Yep, I’m going there. That awkward, not-often talked about subject coupled with epilepsy. When epilepsy and seizures decide to kill the mood for intimacy in a relationship. Sometimes we might feel self-conscious of our bodies, our emotions, or a deep…

    By Tiffany Kairos September 25, 2019
  • Epilepsy,  Personal

    Secondary Epilepsy

    “Because I love you, because I care for you, because I know what you endure… you will never endure alone.” – Chris Kairos December 11, 2008, what seemed like a normal day, while at work, I received a call that…

    By Tiffany Kairos August 31, 2019
  • Epilepsy,  Personal

    Epilepsy Quirks

    The journey in living with epilepsy hasn’t always been without its stumbles and trials. Regardless, I’ve learned quite a bit throughout the years. In having developed a tougher skin, absorbing wisdom and learning more each day, it’s important to not…

    By Tiffany Kairos October 12, 2017

Instagram

✵ You Are Your Greatest Advocate ✵ ▪ ▪ An ✵ You Are Your Greatest Advocate ✵
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An advocate is someone who helps us speak up so that our voices are heard, our rights are understood and our problems are resolved.
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Not only is it ideal to have an advocate on our side as we take this journey living with chronic illness, but it’s essential to remember that WE are our greatest advocates! 
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We’ve got to fight for ourselves. We are strong enough to overcome anything that we come up against. If guilt comes knocking, don’t answer the door. You are allowed to do what you need to do to heal and keep your boundaries firm without beating yourself up.
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Comment 💪🏼 to signify you are your greatest advocate!
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I love you. ♥
❀ When You Don’t Know What To Say ❀ ▪ ▪ ❀ When You Don’t Know What To Say ❀
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Oftentimes, family and friends want to lend a helping hand but don’t know what to say or do.
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Does a chronic illness come with an instruction manual for those that we love? Unfortunately not.
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When you don’t know what to say, sometimes you don’t need to say anything, just be there, be here beside me. 
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Your presence alone is the greatest gift you can give. It is helpful and comfortable.
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Thank you to those who go out of their way to show that they care.
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TAG someone to who has been a gift in your life!
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I love you! ♥
✩ Hey There Warrior ✩ ▪ ▪ People oftentime ✩ Hey There Warrior ✩
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People oftentimes ask me how I maintain a positive outlook after having lived with epilepsy for over a decade. Enduring tests, handfuls of pills that don’t always quiet my seizures, emotional rollercoaster rides, being housebound and more. 
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I won’t sugarcoat it. It takes a bunch of time and work. But it’s so worth it because of the strength and perseverance gained. Investing in yourself is the best form of self care possible. 
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Remind yourself of what you’ve been able to overcome. All the times you felt like you weren’t going to make it through, you proved yourself wrong. You’re more powerful than you think. 
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Comment ⚡️ to signify that you are indeed a warrior!
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I love you. ♥
✵ Take Your Time The Right Way ✵ ▪ ▪ Live ✵ Take Your Time The Right Way ✵
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Live your life by a compass not a clock. It doesn’t matter how fast you’re going, as long as you’re taking steps into the right direction. You’ll be encouraged and empowered at how far you’ve come when you look back after all the work you’ve put in!
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I applaud you and I’m with you in this fight! Know that you are a beacon of light!
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I love you. ♥
✵ Rockin’ Epilepsy Apparel ✵ ▪ ▪ I love ✵ Rockin’ Epilepsy Apparel ✵
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I love fun mail! Look what just showed up. Stop by @epilepsyshop and check out their epilepsy apparel. 🛍
✵ Hats Off To Your Self Respect ✵ ▪ ▪ Do y ✵ Hats Off To Your Self Respect ✵
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Do you ever find yourself feeling guilty for taking time for yourself? Feeling bad for backing out or canceling plans when you just aren’t feeling your best?
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Have you ever had anyone shame you or blame you? Call you selfish or cause you to feel as though the world revolves around you? 
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Guess what? Self care is not self indulgence. As a matter of fact, self care is self respect. You’re showing yourself that your health matters. That you want to invest in you so that you can invest in others and other activities too. 
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So don’t for a moment feel heavy hearted for caring for yourself. It’s not selfish at all. I applaud it. I applaud you.
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Comment 💯 to signify that you stand behind self care as self respect! 
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I love you. ♥
♡ Loving Reminder ♡ ▪ ▪ Do you use positiv ♡ Loving Reminder ♡
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Do you use positive self-talk along your journey with epilepsy or whichever chronic illness you may be battling right now?
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Do you use positive self talk to get you motivated or avoid getting “beat up” by your own self-criticism?
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Living with a chronic illness isn’t easy. We come up against many challenges and obstacles. But we have to remember that negative self talk is almost always self defeating and we must treat ourselves like we would treat the person that we love the most.
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Tell me ONE thing that you celebrate each day?
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I’ll start - I celebrate not getting upset even if I’ve experienced a seizure.
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I love you. ♥
✵ Take The Wheel ✵ ▪ ▪ Have you had to sid ✵ Take The Wheel ✵
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Have you had to sideline a thing or two due to your chronic illness? Though it may protect you, does it make life a smidge challenging?
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You are not alone. Most if not all of us have had to set aside something for the betterment of our health, making achieving something we desire a wee bit more challenging. 
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But let me encourage you that challenges make us stronger, the more we fight, the more we overcome.
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The way in which we approach a situation and the effort that we invest to conquer matters. Be vigilant. Be courageous. Be filled with a ‘No Quit’ spirit! 
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Comment a ⚡️ to signify that you don’t quit!
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I love you. ♥
✵ Hydrate Hydrate Hydrate ✵ ▪ ▪ Health and ✵ Hydrate Hydrate Hydrate ✵
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Health and fitness are a top priority in my life since becoming diagnosed with epilepsy and I treat it as a very important full-time job.
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There were a lot of adjustments that I needed to make including diet and exercise. Once I began to treat my body with love and care, eating better and hitting the gym, I felt the best I’d ever had in my entire life. I couldn’t imagine a day without a solid workout or a healthy meal.
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Another essential factor is staying hydrated. We all know that we aught to be drinking plenty of water but those of us with a chronic illness especially need to be best friends with H2O. This is just one way we can reduce the risk of a seizure.
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My adorable water jug from @hydrojug just arrived! So hyped!! This will help me stay hydrated and even includes a fun sleeve to keep the water nice and cold.
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HydroJug has several colors and fun patterned sleeves. I highly recommend checking it out! 
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Comment 💦 to signify that water is one of your favorite drinks!
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Trending Tags

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  • How I Exercise While Living With Epilepsy | Plus What You Need To Know Before Hitting The Gym

Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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