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  • Awareness,  Epilepsy

    5 Things Those Living With Epilepsy Want You To Know

    Epilepsy can intrude into anyone’s life, at any time. Millions of men, women and children battle this selfish and at times difficult condition every single day. All of us diagnosed are on the same journey with different stories to tell.…

    By Tiffany Kairos March 19, 2021
  • Epilepsy,  Personal

    Setting Boundaries With Epilepsy – What You Need To Know

    Living with a chronic illness means learning to get comfortable setting boundaries and saying “no”. My epilepsy diagnosis required placing certain actions and activities on the back burner to avoid inducing a seizure. This was a hard adjustment for me…

    By Tiffany Kairos March 5, 2021
  • Epilepsy,  Marriage

    5 Things To Remember When Being A Spouse With Epilepsy

    I’m nowhere near the perfect wife, but I do know that marriage with a chronic illness is challenging, and takes intentional effort. The Epilepsy Condition Living with epilepsy and learning to manage the condition is not only challenging, it can…

    By Tiffany Kairos February 5, 2021
  • Epilepsy

    8 Qualities You Can Find In Someone Living With Epilepsy

    Often, I reflect back on times that I would tell others that they would never understand what I was going through because they were not living with my epilepsy. Many of us living with a chronic illness sometimes say or…

    By Tiffany Kairos December 30, 2020
  • Awareness,  Epilepsy

    6 People You Meet Along Your Journey With Epilepsy

    You’ve been diagnosed with epilepsy. A life-changing experience. Epilepsy doesn’t always show its cards and it can go unnoticed by family, friends and the public. With epilepsy being a part of your everyday life, you’re bound to meet a variety…

    By Tiffany Kairos December 8, 2020
  • Awareness,  Epilepsy

    Things To Never Do When Someone Tells You They Have Epilepsy

    I remember the very first time that someone spoke the words, “Everything will be okay!” speaking about my epilepsy. Fire engulfed my stomach. When a family member spoke this to me, I knew they meant well, however, I wanted to…

    By Tiffany Kairos November 6, 2020
  • Epilepsy,  Personal

    How I Exercise While Living With Epilepsy | Plus What You Need To Know Before Hitting The Gym

    This is a topic that many people have reached out to me in regards to and as someone who avidly takes part in exercise, I find it beneficial and very important to break it down to get the greatest information…

    By Tiffany Kairos September 30, 2020
  • Awareness,  Epilepsy,  Personal

    Understanding Brain Fog And Epilepsy

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog is more than just the occasional forgetfulness. We all experience…

    By Tiffany Kairos August 31, 2020
  • Epilepsy,  Personal

    10 Most Common Questions People Ask Me About Epilepsy

    Over the many years of living with epilepsy, I’ve received a lot of questions about my condition, understandably. Some come up more often than others. Here are 10 of the most common questions I’ve been asked:  Does it hurt? It…

    By Tiffany Kairos July 19, 2020
  • Epilepsy,  Personal

    When They Say “I Don’t Know How You Do It” Living with Epilepsy

    Living with epilepsy is not a walk in the park. It’s a daily challenge. Not only physically, but emotionally and spiritually. The condition stretches you to your breaking point, like a rubber band creaking in readiness to snap. Those who…

    By Tiffany Kairos June 17, 2020
  • Epilepsy,  Personal

    How I Upcycle Epilepsy In My Life

    “If you give up, you’ll have an attitude of resignation, of defeat that will affect—and infect—the rest of your life. Acceptance is empowering because it’s a choice you’ve made. Even if the outcome isn’t what you hoped for, you’re saying,…

    By Tiffany Kairos May 28, 2020
  • Epilepsy,  Personal

    Epilepsy And The Dream Of Motherhood

    I’d always wanted to be a mother. At the age of nine on my birthday, I didn’t ask for barbies or make-up. I didn’t ask for glittery toys, no. Instead I asked only for a baby name book so that…

    By Tiffany Kairos May 9, 2020
  • Epilepsy,  Personal

    You Don’t Look Like You Have Epilepsy

    I live with Epilepsy. I have lived with this condition for over a decade. I was diagnosed with this condition in 2008. Four short months after marrying my husband. I had one previous seizure at the age of 16 yet…

    By Tiffany Kairos April 24, 2020
  • Epilepsy

    10 Things To Remember When Epilepsy Walks Into Your Life

    When epilepsy walks into your life, it’s as if a tornado has unexpectedly tossed about your entire life and you’re left to pick up the pieces and rebuild. For some, the rebuilding process takes longer than others. An epilepsy diagnosis…

    By Tiffany Kairos April 1, 2020
  • Epilepsy,  Personal

    How I Navigate My Epilepsy Self-Care During Coronavirus

    Self-care is an important component of all-around wellness when you have a chronic illness. For example, epilepsy. But suppose an unanticipated situation shakes up your everyday self-care routine. How do you navigate that? Over the last decade I’ve learned to…

    By Tiffany Kairos March 27, 2020
  • Epilepsy

    5 Things Not To Be Angry At Living With Epilepsy

    Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care your age, your race or time within your life. This condition can happen to anyone. Some are welcomed to the world with epilepsy. Some are introduced to epilepsy…

    By Tiffany Kairos March 4, 2020
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✵ HEY SUPERHUMANS! ✵ ▪ ▪ Do you realize y ✵ HEY SUPERHUMANS! ✵ 
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Do you realize your strength? You are so much stronger than you could have imagined. Living with a chronic illness isn’t easy. It requires a lot from us. Especially when we have to move on once being diagnosed. Acceptance is a monumental key in our journey. The rest doesn’t happen in a day but it’s up to us to climb and stand atop these mountains.
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We have to carry on when we feel down. We have to carry on when we are let down. We have to carry on when times are tough. We have to carry on even when we feel like we’ve had enough.
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I’m proud. So proud of your superhuman strength. You’ve endured a lot but you still run the race. Hold your head up high and smile today because you are amazing and an inspiration to countless. Even if you don’t see it or quite believe it, it’s true. Keep on moving and standing atop of mountains with your persevering light!
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Comment 🙌🏼 my SUPERHUMANS!
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I love you. ♥
✬ WOOSAH! ✬ ▪ ▪ Exciting News Alert: Recen ✬ WOOSAH! ✬
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Exciting News Alert: Recently, I entered an ultimate warrior bundle giveaway hosted by good friends and fellow advocates, @christallebodiford and @risingabovera!
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I was selected as the winner! What an honor is that!
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Christalle’s package JUST arrived in the mail. How neat is this? Her giveaway features a copy of her book “Woosah Warrior - Coloring Book & Journaling Prompts For Chronic Illness Warriors”!
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I highly encourage you to get to know both Effie & Christalle and pick up a copy of Woosah Warrior!
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A 🙌🏼 to all of my chronic illness warriors out there!
❉ CAN’T BE TAKEN DOWN ❉ ▪ ▪ Look at you! ❉ CAN’T BE TAKEN DOWN ❉
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Look at you! I am in awe of your strength, given the challenges that you face living with chronic illness. It isn’t easy. It isn’t fun. But you refuse to let it steal your joy.
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Take a look in the mirror at the person you’ve become. Stronger. Wiser. Ready for whatever may come. 
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You’re still standing and standing tall! Be in love with the person who refuses to fall.
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Know it and own it. You can’t be taken down.
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Comment 🙌🏼 to signify that you cannot be taken down!
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I love you. ♥
♡ DON’T TREAT ME LIKE I’M MADE OF GLASS ♡ ♡ DON’T TREAT ME LIKE I’M MADE OF GLASS ♡
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Have you ever felt like you’ve been treated differently since diagnosis? Constantly asked if you’re okay...if you need help...apologizing for doing or saying things that don’t require an apology?
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Have you ever just wanted some time alone but others insist on having someone nearby or declare that it’s not a good idea?
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Here’s the the thing...in many cases, intentions mean well but those of us with a chronic illness don’t want to be treated like we’re made of glass. Yes we have limitations and sure...we could use a hand here or there but we want to be treated no differently. We will not shatter so pull back the reigns respectfully. 
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I do not consider myself made of glass. Rather, I consider myself made of steel. Strong and can withstand many forces that I face. I refuse to bend, I refuse to break.
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It took time to develop my strength but this journey has and continues to reinforce my ability to sustain this condition. 
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As you journey with chronic illness remember:
✨ You are strong
✨ You are in breakable
✨ You are unshakable 
✨ You are resilient 
✨ You inspire more than you know
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Comment 🔥 to signify that you are STRONG!!
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I love you. ♥
✵ LOOK AT YOU THRIVE ✵ ▪ ▪ We all face dif ✵ LOOK AT YOU THRIVE ✵
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We all face difficulties in our lives. Those of us with chronic illnesses face mightier difficulties than most. 
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A flip of the coin. We can never tell if it will be a good day or not-so good day. If our illness will cut us some slack or set a trap.
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Regardless, we press on. We persevere. We keep on keeping on. We choose to LIVE.
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We didn’t ask for our illness to be a part of our lives but we respond with the refusal to allow it to take us down.
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Take every second of every day to thrive. To live abundantly. Despite it all. You have the wheel. You are amazingly strong!
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Comment 🔥 to signify that you will thrive! 
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I love you! ♥
✵ ILLNESS CAN’T STEAL OUR GLOW! ✵ ▪ ▪ Wh ✵ ILLNESS CAN’T STEAL OUR GLOW! ✵
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What color is life with chronic illness? I see color so much differently and intensely than a healthy person.
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I see colors of gratitude for all of the people and abilities that I have regardless of my condition. I see colors of compassion for others who struggle not just with illness but anything that makes life challenging or painful. I see colors of awe for every single thing great and small that surrounds me in nature reminding me of how precious and beautiful life is. I see colors of patience because every second matters and it’s so important to cherish it. 
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I could keep going but IG would hate me. Rather than colors being drained after my diagnosis, it only continues to grow twice as bright. 
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What colors do you see and what does it mean to you?
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Comment 🌈 to signify your condition can’t steal your glow!
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I love you. ♥
❉ JUST SO YOU KNOW ❉ ▪ ▪ Are you questioni ❉ JUST SO YOU KNOW ❉
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Are you questioning how well you’re handling your battle with your chronic illness? Are you doubting yourself? Beating yourself up? Wondering if you’re doing enough? You NEED to know...
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You are doing SO much better than you think you know. Be proud of how far you’ve come. Every single accomplishment, small or big.
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I am VERY proud of all that you have overcome because it is not easy living with a chronic illness but you have hung in there and refused to quit!
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I’m cheering you on! Keep going! Don’t stop! You’ve got this. You are NOT alone. I see you, I hear you and I stand with you!
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Comment a 🙌🏼 to signify that we’ve got this!
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I love you. ♥
❉ YOU DON’T HAVE TO AUTHENTICATE ❉ ▪ ▪ H ❉ YOU DON’T HAVE TO AUTHENTICATE ❉
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Have you ever had your chronic illness called into question? Accused of overreacting or even faking? 
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How is it that you can (insert fun activity) if you have a chronic illness, they ask? 
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We can appear fit as a fiddle on the outside. But on the inside our bodies are at war fighting away an illness that we have no control over. 
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We have good days where our illnesses cut us some slack and yes we can kick back and enjoy something fun within reason. 
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It’s good to ask questions of course, we want others to learn...to understand...but anyone who questions our illness, or require authenticity is someone who is in extreme need of education. 
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You owe them nothing. You don’t have to prove your illness to anyone. 
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Tune out the toxicity. Know your truth. Stand strong on it. It’s up to them whether they want to believe and show their support. 
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Know it & Own it:
⚡️Your illness is real
⚡️You have nothing to prove
⚡️Your story is valid
⚡️You are allowed to have good days
⚡️You don’t have to ‘look’ a certain way. BE-YOU-tiful! 
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Check out my newest REEL up now!! 
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Love you! ♥
✵ SILENCE ISN’T GOLDEN ✵ ▪ ▪ Staying sil ✵ SILENCE ISN’T GOLDEN ✵
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Staying silent about who we are and what matters to us most is NOT golden! Anyone who intimidates, insinuates, or blatantly tells us voicing the topic our illness needs to be put away has no power over us. 
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They want silence, we get louder because our voices DESERVE to be heard.
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Our VOICES are golden so let’s speak loud about who we are and things that are important to us in living with chronic illness.
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Comment 🔥 to signify you agree! 
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I love you. ♥
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Recent Blogs

  • 5 Things Those Living With Epilepsy Want You To Know
  • Setting Boundaries With Epilepsy – What You Need To Know
  • 5 Things To Remember When Being A Spouse With Epilepsy
  • 8 Qualities You Can Find In Someone Living With Epilepsy
  • 6 People You Meet Along Your Journey With Epilepsy

Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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