The Epilepsy Journey
Random Article
Search
  • Home
  • About Tiffany
  • Epilepsy
  • Media
  • Contact
  • Home
  • About Tiffany
  • Epilepsy
  • Media
  • Contact
  • Awareness,  Epilepsy

    6 Ugly Sides of Epilepsy Most People Don’t Like Talking About

    It’s no secret that having a chronic illness sucks. There are sides to having epilepsy that are ugly or not well studied, and many people don’t know about them at all. Yes, there are still myths – and I’m not…

    By Tiffany Kairos January 7, 2020
  • Awareness,  Epilepsy

    The Road Doesn’t End Here

    One of the most difficult challenges since my diagnosis with epilepsy is finding reliable means of transportation. Sure. I have my husband and members of family who extend their willingness to help me get to and from where I want…

    By Tiffany Kairos September 18, 2019
  • Awareness,  Epilepsy

    How to Beat the Heat Living with Epilepsy

    “‘Cause a little bit of summer is what the whole year is all about.” – John Mayer What do you think of when you hear the word “summer”? Vacation, flip-flops, the beach, napping all afternoon in the hammock, fresh squeezed…

    By Tiffany Kairos August 6, 2019
  • Awareness,  Epilepsy

    What NOT To Do When Living With Epilepsy

    Living with epilepsy, I often reflect on new and different ways to embrace the reality of my condition. Over the course of a decade, I’ve pursued and pocketed different suggestions for what to do, whether it be a new medication…

    By Tiffany Kairos May 28, 2019

Instagram

✵5Words4Epilepsy ✵ ▪ ▪ Suppose that you ha ✵5Words4Epilepsy ✵ ▪ ▪ Suppose that you had the opportunity to talk to epilepsy and let it know exactly how you feel in 5 words. What would you say to epilepsy? ▪ ▪ “Overcome epilepsy with relentless faith.” ▪ ▪ This is my weapon that I carry with me along my journey. Relentless faith. ▪ ▪ Without faith, there is no hope. With God, there’s always hope. ▪ ▪ When you’re initially diagnosed you feel helpless, keeping the faith will get you through. ▪ ▪ @theepilepsynetwork has begun their campaign #5Words4Epilepsy! ▪ ▪ It’s your turn! Jot it down, text it, create a large poster board, get creative! Use #5Words4Epilepsy and don’t forget to tag @theepilepsynetwork ▪ ▪ Comment a 🔥because we are starting one HOT campaign! Our message matters! ▪ ▪ I love you!
✩ No Longer Scared Of The Dark ✩ ▪ ▪ It’ ✩ No Longer Scared Of The Dark ✩ ▪ ▪ It’s in the dark that we cannot see what’s ahead of us. What to expect. What will become of us. ▪ ▪ This is how I felt after my diagnosis with epilepsy. I felt as though my world had grown dark. I was frightened. Uncertain of my future. Of what to expect. What would become of me? ▪ ▪ I thought, if I just stood still...gave up...I wouldn’t have to face these unknowns. But what kind of life is that? Simply existing. Not living. ▪ ▪ It took a leap of faith in the dark. A moment of pure bravery. That leap. That bravery was exhilarating and rewarding. I felt myself grow and my soul begin to glow. ▪ ▪ In dark moments, we have to face our fears and take those leaps of faith. Harness our light and push the dark away. ▪ ▪ Comment a 🌟because we are not scared of the dark! ▪ ▪ I love you.
♡ Lipstick? We don’t click. ♡ ▪ ▪ Today ♡ Lipstick? We don’t click. ♡ ▪ ▪ Today is National Lipstick Day. A day that encourages beauties to wear their best color. ▪ ▪ Lipstick? We don’t click. 💄 ▪ ▪ Growing up, I was severely bullied by classmates about my appearance, leaving me to feel quite self-conscious. I toyed with lipstick but it just didn’t feel right for me. ▪ ▪ After my epilepsy diagnosis, my self-consciousness took a hit once again. This condition tried to make me think and feel less about myself. ▪ ▪ Wanting me to believe I was ugly. Unworthy. That I needed makeup to hide damage that had been done and any signs that I was on multiple levels, battling a condition. ▪ ▪ I learned a powerful yet so simple lesson from my years of bullying. You have to love yourself. As you are. Flaws and all. Authenticity is beauty. It’s what makes you unique! ▪ ▪ It doesn’t matter what others think. If they smirk. If they laugh. If they mock. At the end of the day, it comes down to being confident in yourself. And that’s where I’m at. ▪ ▪ Some of us like makeup and lipstick and that’s a lovely thing. For me, I am in Heaven with my @burtsbees Lip Shimmer! That’s as far as it goes. I highly recommend it because it is out of this world amazing and all-natural! My kinda thing. 😉 ▪ ▪ Muah!💋 Happy Lipstick Day Queens! Kiss your mirrors and lay a big colored smooch on someone’s cheek today! ▪ ▪ Comment a bunch of💋’s! ▪ ▪ Love you.
✩ With Every Breath I Have ✩ ▪ ▪ My diagno ✩ With Every Breath I Have ✩ ▪ ▪ My diagnosis gave me perspective. It gave me a sense of what really matters in this world, in my life. ▪ ▪ It made me realize that I really need to be much more present with those that I love. ▪ ▪ It may may be in the present moment and the now. ▪ ▪ I don’t know the number of my days but with every breath I take, I choose to use them for good. To love. To care. To give back. To enjoy the splendors of life and the people in my life. ▪ ▪ I live with epilepsy. Yes I live life to the fullest despite my diagnosis. It’s not always easy but I strive to live not just exist. ▪ ▪ Comment a 🔥 if you strive to LIVE with epilepsy and not just exist. ▪ ▪ I love you.
♡ I’m A Woman. What’s Your Superpower? ♡ ▪ ▪ @derrahoward and @heidiwinkler1, you both have hearts of gold! Thank you for nominating me in this empowering initiative. #ChallengeAccepted 😉 ▪ ▪ As women, let us continue raise our voices for one another. Compliment, support, and empower each other. Let us choose community over competition. Let us encourage and build each other up. ▪ ▪ We are sensitive and gentle. Honest and fierce. We are trailblazers and pioneers. We have endured hardships and heartbreak, and joyously celebrated breakthroughs and growth. ▪ ▪ This challenge is a way that we women can support one another and celebrate ourselves! ▪ ▪ Thank you to every Queen who has encouraged me, inspired me and uplifted me! 👑 ▪ ▪ I love you.
✦ Gain Control ✦ ▪ ▪ When something so unp ✦ Gain Control ✦ ▪ ▪ When something so unpredictable and tragic happened, like my epilepsy diagnosis - it’s inevitable that the feeling of having lost all control over my own thoughts, feelings...even life would wash over me. Equally, many lessons are also learned along the way. ▪ ▪ I fought with heartache and heartbreak. Self-blame and self-criticism. What a difficult road it was to take. ▪ ▪ It takes time to accept the things that we ultimately cannot control and I realized that I had 3 options. Give up. Give in. Or give it your all” ▪ ▪ Can you guess which one I picked? I decided to fight. Why? Because I love my life and those in it. I wasn’t about to let my condition take control of it. ▪ ▪ It’s not what I expected, not what I wanted for my life, but it’s here. So I’m not going to burn my time away by shifting my focus on it instead of all that I have and all that I can do which I am abundantly grateful for. ▪ ▪ I can’t control what has happened, or what will happen day-by-day, but I can control my reaction. The power is in my hands. ▪ ▪ Comment a ⚡️ because the power is in your hands! ▪ ▪ I love you.
✩ Want Me To Represent The Epilepsy Community? ✩ ▪ ▪ I value your support beyond measure and I need your help! ▪ ▪ I have been nominated for 7 WEGO Health Awards! 🤩 ▪ ▪ It would be an honor to represent the Epilepsy Community in the WEGO Health Finals this year! I cannot do that without your help and I am asking you to Endorse (VOTE) me! ▪ ▪ I'm asking ⓯ or more of my friends, the entire Epilepsy Community and even invite family and friends to join in, to support me by endorsing (VOTE) me! ▪ ▪ 🗳 Endorsement goes through July 31st and it only takes 60 seconds to Endorse me! ▪ ▪ So, if you want me to represent the Epilepsy Community in this years’ WEGO Health Awards, please support me and Endorse (VOTE) me! ▪ ▪ You can find the link to my WEGOHealth profile in my BIO! ▪ ▪ How to endorse (VOTE) for me 👇🏼👇🏼👇🏼 1.) Click the link in my BIO! ▪ ▪ 2.) Scroll down until you see the bright blue color “Endorse This Patient Leader.” ▪ ▪ 3.) Click “Endorse This Patient Leader” and select each awards category. ▪ ▪ 4.) Click the blue “Endorse” button! ▪ ▪ Easy peasy lemon squeezy! 🍋 ▪ ▪ With all my heart, thank you! 😘❤️
❀ There’s Something About Change ❀ ▪ ▪ C ❀ There’s Something About Change ❀ ▪ ▪ Change is a part of life and provides opportunity for growth. We all take to change differently and at our own unique pace. ▪ ▪ Being handed a circumstance that is out of your control, such as me - Diagnosed with epilepsy - at first knocked me down for the count. I didn’t want to get back up. In disbelief, fear, broken-hearted, I just wanted to be left there. ▪ ▪ Have you ever gotten tired of being tired? I’d made it to that point not long after. We all carry a flame that’s ready to blaze. To stand up and show up. To not allow epilepsy have control of one more day. ▪ ▪ Yeah. My life changed when I was diagnosed. But I also changed when I arose. The feeling of strength and bravery coursing through me felt so invigorating. ▪ ▪ Just when I thought I’d lost everything, in reality, there was so much, I began gaining. ▪ ▪ Comment a 🔥 because you are stronger and braver than epilepsy will ever be! ▪ ▪ I love you.
✩Toasty Walks We Go✩ ▪ ▪ If you know me, y ✩Toasty Walks We Go✩ ▪ ▪ If you know me, you know that I love fitness. I wasn’t so much in love with fitness until a few years following my epilepsy diagnosis when I decided that I needed to turn my life around and get serious about my overall health. ▪ ▪ Hitting the gym 3-4 days a week, bonus workouts at home and modifying my diet was the name of the game and it was the one of the greatest decisions I’d ever made. I couldn’t imagine life any other way. ▪ ▪ With the Coronavirus Pandemic making gym-going somewhat hazardous, I look to alternative fitness programs like one of my favorites @fitnessblender and creative ways to get a strong workout. One surefire exercise that I love is simply walking! Thanks @salomon for these Sense Max 2 trail shoes! Comfortable, durable and stylish! ▪ ▪ Did you know that walking has countless health benefits, especially for our brains? Walking helps improve oxygen and blood flow to the brain. Pretty awesome right? I’m sure if our brains could talk, they’d thank us for the love. ▪ ▪ It’s summertime and it gets mighty hot! Overheating can cause me seizures so when I hit the trails, I’ve got to take plenty of water with me and don’t try to play SuperWoman. If I need a break on a walk or jog, I do it. I typically prefer to walk/jog with a partner just in case and, it’s nice to spend some quality time! ▪ ▪ Do you enjoy fitness? How about a nice jog or stroll in the park? ▪ ▪ Comment a 🙌🏼 if you love fitness! ▪ ▪ I love you.
Follow on Instagram

Twitter

Tweets by @TiffanyKairos

Trending Tags

Advocate Awareness Condition Coronavirus Diagnosis Epilepsy Family Friend God Independence Intimacy Life Love Marriage Medication Mental Health Motherhood Pregnancy Seizure Symptoms Trigger

Recent Blogs

  • 10 Most Common Questions People Ask Me About Epilepsy
  • When They Say “I Don’t Know How You Do It” Living with Epilepsy
  • How I Upcycle Epilepsy In My Life
  • Epilepsy And The Dream Of Motherhood
  • You Don’t Look Like You Have Epilepsy

Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

2020 © The Epilepsy Journey | Bard Theme by WP Royal.
Back to top