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  • Epilepsy

    5 Things Not To Be Angry At Living With Epilepsy

    Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care your age, your race or time within your life. This condition can happen to anyone. Some are welcomed to the world with epilepsy. Some are introduced to epilepsy…

    By Tiffany Kairos March 4, 2020
  • Epilepsy,  Uncategorized

    How to Protect Your Mental Health While Living with Epilepsy

    What Is Mental Health? Mental health includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate to others, and make choices. Having epilepsy can have a…

    By Tiffany Kairos February 15, 2020
  • Epilepsy,  Personal

    Don’t Feel Sorry For Me Because I Have Epilepsy

    It’s never easy when someone that you know or someone that you love has just been diagnosed with a chronic illness. What can you say to show that you care about them and the challenges they must face? Oftentimes, it…

    By Tiffany Kairos February 7, 2020
  • Epilepsy,  Personal

    How I Practice Self-Renewal While Living With Epilepsy

    What is self-renewal? In reflecting on this, it’s looking at life anew, or maybe even sewing the seeds of things that you’ve been meaning to do for a while. Self-renewal is all about reinvigorating yourself, refreshing your life and taking…

    By Tiffany Kairos February 3, 2020
  • Epilepsy,  Personal

    What Epilepsy Reminds Me

    Over a decade. It has been a long journey and within this journey, I have learned so much, experienced so much, wrestled so many emotions, have had the opportunity to forge so many long lasting friendships with others who too…

    By Tiffany Kairos January 29, 2020
  • Awareness,  Epilepsy

    6 Ugly Sides of Epilepsy Most People Don’t Like Talking About

    It’s no secret that having a chronic illness sucks. There are sides to having epilepsy that are ugly or not well studied, and many people don’t know about them at all. Yes, there are still myths – and I’m not…

    By Tiffany Kairos January 7, 2020
  • Epilepsy,  Personal

    8 Essentials In My Epilepsy Survival Kit

    Living with epilepsy can be taxing not only on the body but also the mind and spirit. Finding the right things to make the journey less rigorous is therapeutic. What works for you might not work for someone else but…

    By Tiffany Kairos December 12, 2019
  • Epilepsy,  Personal

    5 Ways I Improve My Memory While Living With Epilepsy

    “Memory loss is like system reboot.” Memory hindrances. A topic that I’ve discussed lightly over the course of my journey with epilepsy. Is it a mere coincidence or has my memory declined due to the years of seizures and medication?…

    By Tiffany Kairos October 8, 2019
  • Epilepsy,  Marriage,  Personal

    Breaking the Ice on Intimacy and Epilepsy

    Yep, I’m going there. That awkward, not-often talked about subject coupled with epilepsy. When epilepsy and seizures decide to kill the mood for intimacy in a relationship. Sometimes we might feel self-conscious of our bodies, our emotions, or a deep…

    By Tiffany Kairos September 25, 2019
  • Awareness,  Epilepsy

    The Road Doesn’t End Here

    One of the most difficult challenges since my diagnosis with epilepsy is finding reliable means of transportation. Sure. I have my husband and members of family who extend their willingness to help me get to and from where I want…

    By Tiffany Kairos September 18, 2019
  • Epilepsy,  Personal

    Secondary Epilepsy

    “Because I love you, because I care for you, because I know what you endure… you will never endure alone.” – Chris Kairos December 11, 2008, what seemed like a normal day, while at work, I received a call that…

    By Tiffany Kairos August 31, 2019
  • Awareness,  Epilepsy

    How to Beat the Heat Living with Epilepsy

    “‘Cause a little bit of summer is what the whole year is all about.” – John Mayer What do you think of when you hear the word “summer”? Vacation, flip-flops, the beach, napping all afternoon in the hammock, fresh squeezed…

    By Tiffany Kairos August 6, 2019
  • Awareness,  Epilepsy

    What NOT To Do When Living With Epilepsy

    Living with epilepsy, I often reflect on new and different ways to embrace the reality of my condition. Over the course of a decade, I’ve pursued and pocketed different suggestions for what to do, whether it be a new medication…

    By Tiffany Kairos May 28, 2019
  • Epilepsy

    Life With Epilepsy In Public

    “Do you know where you are?” “Can you tell me who the President is?”   These are examples of questions I have been asked when I find myself uncomfortably lying on the floor in a public area. My brain is…

    By Tiffany Kairos April 7, 2019
  • Epilepsy

    How To Love Yourself Despite Epilepsy

    When epilepsy enters into your life, it can take a massive shot at your self-esteem. You’re not able to do certain things you once could do, you’ve got to rely on others for help, the medications that you take have…

    By Tiffany Kairos March 1, 2019
  • Epilepsy

    5 Things That Help Me During A Seizure Setback

    In the ten years that I have lived with epilepsy and experienced seizures, I can’t tell you just how many seizures have pained me, drained me, and unplugged me from every day activities. Below, I’m going to share with you…

    By Tiffany Kairos January 30, 2019
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✵ HEY SUPERHUMANS! ✵ ▪ ▪ Do you realize y ✵ HEY SUPERHUMANS! ✵ 
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Do you realize your strength? You are so much stronger than you could have imagined. Living with a chronic illness isn’t easy. It requires a lot from us. Especially when we have to move on once being diagnosed. Acceptance is a monumental key in our journey. The rest doesn’t happen in a day but it’s up to us to climb and stand atop these mountains.
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We have to carry on when we feel down. We have to carry on when we are let down. We have to carry on when times are tough. We have to carry on even when we feel like we’ve had enough.
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I’m proud. So proud of your superhuman strength. You’ve endured a lot but you still run the race. Hold your head up high and smile today because you are amazing and an inspiration to countless. Even if you don’t see it or quite believe it, it’s true. Keep on moving and standing atop of mountains with your persevering light!
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Comment 🙌🏼 my SUPERHUMANS!
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I love you. ♥
✬ WOOSAH! ✬ ▪ ▪ Exciting News Alert: Recen ✬ WOOSAH! ✬
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Exciting News Alert: Recently, I entered an ultimate warrior bundle giveaway hosted by good friends and fellow advocates, @christallebodiford and @risingabovera!
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I was selected as the winner! What an honor is that!
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Christalle’s package JUST arrived in the mail. How neat is this? Her giveaway features a copy of her book “Woosah Warrior - Coloring Book & Journaling Prompts For Chronic Illness Warriors”!
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I highly encourage you to get to know both Effie & Christalle and pick up a copy of Woosah Warrior!
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A 🙌🏼 to all of my chronic illness warriors out there!
❉ CAN’T BE TAKEN DOWN ❉ ▪ ▪ Look at you! ❉ CAN’T BE TAKEN DOWN ❉
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Look at you! I am in awe of your strength, given the challenges that you face living with chronic illness. It isn’t easy. It isn’t fun. But you refuse to let it steal your joy.
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Take a look in the mirror at the person you’ve become. Stronger. Wiser. Ready for whatever may come. 
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You’re still standing and standing tall! Be in love with the person who refuses to fall.
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Know it and own it. You can’t be taken down.
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Comment 🙌🏼 to signify that you cannot be taken down!
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I love you. ♥
♡ DON’T TREAT ME LIKE I’M MADE OF GLASS ♡ ♡ DON’T TREAT ME LIKE I’M MADE OF GLASS ♡
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Have you ever felt like you’ve been treated differently since diagnosis? Constantly asked if you’re okay...if you need help...apologizing for doing or saying things that don’t require an apology?
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Have you ever just wanted some time alone but others insist on having someone nearby or declare that it’s not a good idea?
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Here’s the the thing...in many cases, intentions mean well but those of us with a chronic illness don’t want to be treated like we’re made of glass. Yes we have limitations and sure...we could use a hand here or there but we want to be treated no differently. We will not shatter so pull back the reigns respectfully. 
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I do not consider myself made of glass. Rather, I consider myself made of steel. Strong and can withstand many forces that I face. I refuse to bend, I refuse to break.
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It took time to develop my strength but this journey has and continues to reinforce my ability to sustain this condition. 
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As you journey with chronic illness remember:
✨ You are strong
✨ You are in breakable
✨ You are unshakable 
✨ You are resilient 
✨ You inspire more than you know
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Comment 🔥 to signify that you are STRONG!!
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I love you. ♥
✵ LOOK AT YOU THRIVE ✵ ▪ ▪ We all face dif ✵ LOOK AT YOU THRIVE ✵
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We all face difficulties in our lives. Those of us with chronic illnesses face mightier difficulties than most. 
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A flip of the coin. We can never tell if it will be a good day or not-so good day. If our illness will cut us some slack or set a trap.
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Regardless, we press on. We persevere. We keep on keeping on. We choose to LIVE.
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We didn’t ask for our illness to be a part of our lives but we respond with the refusal to allow it to take us down.
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Take every second of every day to thrive. To live abundantly. Despite it all. You have the wheel. You are amazingly strong!
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Comment 🔥 to signify that you will thrive! 
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I love you! ♥
✵ ILLNESS CAN’T STEAL OUR GLOW! ✵ ▪ ▪ Wh ✵ ILLNESS CAN’T STEAL OUR GLOW! ✵
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What color is life with chronic illness? I see color so much differently and intensely than a healthy person.
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I see colors of gratitude for all of the people and abilities that I have regardless of my condition. I see colors of compassion for others who struggle not just with illness but anything that makes life challenging or painful. I see colors of awe for every single thing great and small that surrounds me in nature reminding me of how precious and beautiful life is. I see colors of patience because every second matters and it’s so important to cherish it. 
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I could keep going but IG would hate me. Rather than colors being drained after my diagnosis, it only continues to grow twice as bright. 
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What colors do you see and what does it mean to you?
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Comment 🌈 to signify your condition can’t steal your glow!
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I love you. ♥
❉ JUST SO YOU KNOW ❉ ▪ ▪ Are you questioni ❉ JUST SO YOU KNOW ❉
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Are you questioning how well you’re handling your battle with your chronic illness? Are you doubting yourself? Beating yourself up? Wondering if you’re doing enough? You NEED to know...
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You are doing SO much better than you think you know. Be proud of how far you’ve come. Every single accomplishment, small or big.
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I am VERY proud of all that you have overcome because it is not easy living with a chronic illness but you have hung in there and refused to quit!
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I’m cheering you on! Keep going! Don’t stop! You’ve got this. You are NOT alone. I see you, I hear you and I stand with you!
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Comment a 🙌🏼 to signify that we’ve got this!
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I love you. ♥
❉ YOU DON’T HAVE TO AUTHENTICATE ❉ ▪ ▪ H ❉ YOU DON’T HAVE TO AUTHENTICATE ❉
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Have you ever had your chronic illness called into question? Accused of overreacting or even faking? 
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How is it that you can (insert fun activity) if you have a chronic illness, they ask? 
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We can appear fit as a fiddle on the outside. But on the inside our bodies are at war fighting away an illness that we have no control over. 
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We have good days where our illnesses cut us some slack and yes we can kick back and enjoy something fun within reason. 
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It’s good to ask questions of course, we want others to learn...to understand...but anyone who questions our illness, or require authenticity is someone who is in extreme need of education. 
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You owe them nothing. You don’t have to prove your illness to anyone. 
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Tune out the toxicity. Know your truth. Stand strong on it. It’s up to them whether they want to believe and show their support. 
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Know it & Own it:
⚡️Your illness is real
⚡️You have nothing to prove
⚡️Your story is valid
⚡️You are allowed to have good days
⚡️You don’t have to ‘look’ a certain way. BE-YOU-tiful! 
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Check out my newest REEL up now!! 
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Love you! ♥
✵ SILENCE ISN’T GOLDEN ✵ ▪ ▪ Staying sil ✵ SILENCE ISN’T GOLDEN ✵
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Staying silent about who we are and what matters to us most is NOT golden! Anyone who intimidates, insinuates, or blatantly tells us voicing the topic our illness needs to be put away has no power over us. 
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They want silence, we get louder because our voices DESERVE to be heard.
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Our VOICES are golden so let’s speak loud about who we are and things that are important to us in living with chronic illness.
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Comment 🔥 to signify you agree! 
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I love you. ♥
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Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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