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  • Epilepsy

    8 Qualities You Can Find In Someone Living With Epilepsy

    Often, I reflect back on times that I would tell others that they would never understand what I was going through because they were not living with my epilepsy. Many of us living with a chronic illness sometimes say or…

    By Tiffany Kairos December 30, 2020
  • Awareness,  Epilepsy

    6 People You Meet Along Your Journey With Epilepsy

    You’ve been diagnosed with epilepsy. A life-changing experience. Epilepsy doesn’t always show its cards and it can go unnoticed by family, friends and the public. With epilepsy being a part of your everyday life, you’re bound to meet a variety…

    By Tiffany Kairos December 8, 2020
  • Awareness,  Uncategorized

    The Ultimate Gift Guide – Gift Ideas For Someone With Epilepsy

    Epilepsy is hard to explain, let alone understand. It can be a real head scratcher to come up with an ideal gift for someone living with epilepsy, especially if you don’t live with it yourself. Not to worry! This gift…

    By Tiffany Kairos November 20, 2020
  • Awareness,  Epilepsy

    Things To Never Do When Someone Tells You They Have Epilepsy

    I remember the very first time that someone spoke the words, “Everything will be okay!” speaking about my epilepsy. Fire engulfed my stomach. When a family member spoke this to me, I knew they meant well, however, I wanted to…

    By Tiffany Kairos November 6, 2020
  • Epilepsy,  Personal

    How I Exercise While Living With Epilepsy | Plus What You Need To Know Before Hitting The Gym

    This is a topic that many people have reached out to me in regards to and as someone who avidly takes part in exercise, I find it beneficial and very important to break it down to get the greatest information…

    By Tiffany Kairos September 30, 2020
  • Awareness,  Epilepsy,  Personal

    Understanding Brain Fog And Epilepsy

    Speaking candidly, alongside seizures, brain fog is one of the most difficult – and sometimes exhausting – parts of living with epilepsy. What does brain fog feel like? Brain fog is more than just the occasional forgetfulness. We all experience…

    By Tiffany Kairos August 31, 2020
  • Epilepsy,  Personal

    10 Most Common Questions People Ask Me About Epilepsy

    Over the many years of living with epilepsy, I’ve received a lot of questions about my condition, understandably. Some come up more often than others. Here are 10 of the most common questions I’ve been asked:  Does it hurt? It…

    By Tiffany Kairos July 19, 2020
  • Epilepsy,  Personal

    When They Say “I Don’t Know How You Do It” Living with Epilepsy

    Living with epilepsy is not a walk in the park. It’s a daily challenge. Not only physically, but emotionally and spiritually. The condition stretches you to your breaking point, like a rubber band creaking in readiness to snap. Those who…

    By Tiffany Kairos June 17, 2020
  • Epilepsy,  Personal

    How I Upcycle Epilepsy In My Life

    “If you give up, you’ll have an attitude of resignation, of defeat that will affect—and infect—the rest of your life. Acceptance is empowering because it’s a choice you’ve made. Even if the outcome isn’t what you hoped for, you’re saying,…

    By Tiffany Kairos May 28, 2020
  • Epilepsy,  Personal

    Epilepsy And The Dream Of Motherhood

    I’d always wanted to be a mother. At the age of nine on my birthday, I didn’t ask for barbies or make-up. I didn’t ask for glittery toys, no. Instead I asked only for a baby name book so that…

    By Tiffany Kairos May 9, 2020
  • Epilepsy,  Personal

    You Don’t Look Like You Have Epilepsy

    I live with Epilepsy. I have lived with this condition for over a decade. I was diagnosed with this condition in 2008. Four short months after marrying my husband. I had one previous seizure at the age of 16 yet…

    By Tiffany Kairos April 24, 2020
  • Epilepsy

    10 Things To Remember When Epilepsy Walks Into Your Life

    When epilepsy walks into your life, it’s as if a tornado has unexpectedly tossed about your entire life and you’re left to pick up the pieces and rebuild. For some, the rebuilding process takes longer than others. An epilepsy diagnosis…

    By Tiffany Kairos April 1, 2020
  • Epilepsy,  Personal

    How I Navigate My Epilepsy Self-Care During Coronavirus

    Self-care is an important component of all-around wellness when you have a chronic illness. For example, epilepsy. But suppose an unanticipated situation shakes up your everyday self-care routine. How do you navigate that? Over the last decade I’ve learned to…

    By Tiffany Kairos March 27, 2020
  • Epilepsy

    5 Things Not To Be Angry At Living With Epilepsy

    Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care your age, your race or time within your life. This condition can happen to anyone. Some are welcomed to the world with epilepsy. Some are introduced to epilepsy…

    By Tiffany Kairos March 4, 2020
  • Epilepsy,  Uncategorized

    How to Protect Your Mental Health While Living with Epilepsy

    What Is Mental Health? Mental health includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate to others, and make choices. Having epilepsy can have a…

    By Tiffany Kairos February 15, 2020
  • Epilepsy,  Personal

    Don’t Feel Sorry For Me Because I Have Epilepsy

    It’s never easy when someone that you know or someone that you love has just been diagnosed with a chronic illness. What can you say to show that you care about them and the challenges they must face? Oftentimes, it…

    By Tiffany Kairos February 7, 2020
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Instagram

✵ Does Your Night Stand Look Like Mine? ✵ ▪ ✵ Does Your Night Stand Look Like Mine? ✵
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How many of my chronic illness crusaders have a night stand that also serves as a makeshift pharmacy?
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Medications and other items that can help manage or ease our illnesses.
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Besides medication, what is on your nightstand to help you with your chronic illness?
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Comment 💊to signify that your night stand also serves as a pharmacy!
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I love you. ♥
♡ I’m proud of you ♡ ▪ ▪ Going from day- ♡ I’m proud of you ♡
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Going from day-to-day contending with a chronic illness is no easy feat. The difficulties and challenges faced can be daunting. It’s quite easy to allow yourself to fall apart but standing strong, holding yourself together despite the heavy winds and bumpy roads, refusing to give up is the single most important weapon that you have in your arsenal.
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I am proud of you for defying your illness. I am proud of you for fighting through this. You are warriors. You are inspirations. Be proud of yourselves today too.
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Comment 🔥 to signify that you refuse to give up!
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I love you. ♥
✵ You Are Your Greatest Advocate ✵ ▪ ▪ An ✵ You Are Your Greatest Advocate ✵
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An advocate is someone who helps us speak up so that our voices are heard, our rights are understood and our problems are resolved.
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Not only is it ideal to have an advocate on our side as we take this journey living with chronic illness, but it’s essential to remember that WE are our greatest advocates! 
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We’ve got to fight for ourselves. We are strong enough to overcome anything that we come up against. If guilt comes knocking, don’t answer the door. You are allowed to do what you need to do to heal and keep your boundaries firm without beating yourself up.
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Comment 💪🏼 to signify you are your greatest advocate!
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I love you. ♥
❀ When You Don’t Know What To Say ❀ ▪ ▪ ❀ When You Don’t Know What To Say ❀
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Oftentimes, family and friends want to lend a helping hand but don’t know what to say or do.
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Does a chronic illness come with an instruction manual for those that we love? Unfortunately not.
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When you don’t know what to say, sometimes you don’t need to say anything, just be there, be here beside me. 
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Your presence alone is the greatest gift you can give. It is helpful and comfortable.
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Thank you to those who go out of their way to show that they care.
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TAG someone to who has been a gift in your life!
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I love you! ♥
✩ Hey There Warrior ✩ ▪ ▪ People oftentime ✩ Hey There Warrior ✩
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People oftentimes ask me how I maintain a positive outlook after having lived with epilepsy for over a decade. Enduring tests, handfuls of pills that don’t always quiet my seizures, emotional rollercoaster rides, being housebound and more. 
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I won’t sugarcoat it. It takes a bunch of time and work. But it’s so worth it because of the strength and perseverance gained. Investing in yourself is the best form of self care possible. 
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Remind yourself of what you’ve been able to overcome. All the times you felt like you weren’t going to make it through, you proved yourself wrong. You’re more powerful than you think. 
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Comment ⚡️ to signify that you are indeed a warrior!
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I love you. ♥
✵ Take Your Time The Right Way ✵ ▪ ▪ Live ✵ Take Your Time The Right Way ✵
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Live your life by a compass not a clock. It doesn’t matter how fast you’re going, as long as you’re taking steps into the right direction. You’ll be encouraged and empowered at how far you’ve come when you look back after all the work you’ve put in!
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I applaud you and I’m with you in this fight! Know that you are a beacon of light!
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I love you. ♥
✵ Rockin’ Epilepsy Apparel ✵ ▪ ▪ I love ✵ Rockin’ Epilepsy Apparel ✵
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I love fun mail! Look what just showed up. Stop by @epilepsyshop and check out their epilepsy apparel. 🛍
✵ Hats Off To Your Self Respect ✵ ▪ ▪ Do y ✵ Hats Off To Your Self Respect ✵
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Do you ever find yourself feeling guilty for taking time for yourself? Feeling bad for backing out or canceling plans when you just aren’t feeling your best?
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Have you ever had anyone shame you or blame you? Call you selfish or cause you to feel as though the world revolves around you? 
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Guess what? Self care is not self indulgence. As a matter of fact, self care is self respect. You’re showing yourself that your health matters. That you want to invest in you so that you can invest in others and other activities too. 
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So don’t for a moment feel heavy hearted for caring for yourself. It’s not selfish at all. I applaud it. I applaud you.
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Comment 💯 to signify that you stand behind self care as self respect! 
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I love you. ♥
♡ Loving Reminder ♡ ▪ ▪ Do you use positiv ♡ Loving Reminder ♡
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Do you use positive self-talk along your journey with epilepsy or whichever chronic illness you may be battling right now?
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Do you use positive self talk to get you motivated or avoid getting “beat up” by your own self-criticism?
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Living with a chronic illness isn’t easy. We come up against many challenges and obstacles. But we have to remember that negative self talk is almost always self defeating and we must treat ourselves like we would treat the person that we love the most.
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Tell me ONE thing that you celebrate each day?
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I’ll start - I celebrate not getting upset even if I’ve experienced a seizure.
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I love you. ♥
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Recent Blogs

  • 8 Qualities You Can Find In Someone Living With Epilepsy
  • 6 People You Meet Along Your Journey With Epilepsy
  • The Ultimate Gift Guide – Gift Ideas For Someone With Epilepsy
  • Things To Never Do When Someone Tells You They Have Epilepsy
  • How I Exercise While Living With Epilepsy | Plus What You Need To Know Before Hitting The Gym

Disclaimer

This blog is not here to replace medical advice from trained professionals.

Please seek medical advice.

This blog serves to offer my personal experience with epilepsy, what has worked for me, encouragement and support.

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