Epilepsy

5 Ways I Stay Positive Living With Epilepsy

back of girl opening curtains in a bedroom

Epilepsy has one job, and one job only. To attempt to make our lives a living hell. We have one job too as epilepsy fighters. To return the favor. You see, I refuse to allow epilepsy to steal, kill and destroy my joy in life. Sure, epilepsy is here and it’s going to be here for a time. However, I’ve got my life to live and I’m going to live it to the fullest regardless of this condition. Yeah, it might get in the way from time to time and I may need to make some adjustments, but that is okay with me.

The challenge that I’m presented with here, is an opportunity to grow and to become stronger as a person. The more difficult the challenge, the greater opportunity for growth and strength.

This motivation and inspiration has propelled me forward throughout my entire journey. Becoming diagnosed at age 22, just 4 months after marriage was not what I was planning or prepared for. This challenged me to the very brink of what I believed I could endure. However, I overcame because I not only had God at the center of my life, I have an incredible husband, I’ve an amazing family and I absolutely refused to give up even though my life had been suddenly turned upside down.

From the very beginning I’ve reminded myself and shared with others,

“Don’t let epilepsy defeat you, let it inspire you.”

5 ways I enjoy staying positive living with epilepsy.

1.) Counting Blessings – I could spend all of my time thinking and reflecting on how terrible and awful my situation is. However, you know what? My blessings far outweigh my burdens. So I’d rather think and reflect on that more often. It causes me to smile, brightens my mood, motivates me, inspires me, gives me purpose etc. etc. etc.

2.) Pursuing Exciting Hobbies and Interests – Just because a diagnosis comes into my life doesn’t mean life is put on hold. This does not mean life is over. This doesn’t mean that I cannot pursue my hobbies, interests, goals and dreams in life. As a matter of fact, it causes me to be all the more ambitious to want to achieve my goals and dreams in life, in a smart and cautious manner of course. I will live my life and I will not allow epilepsy to prevent me from living life to the fullest.

3.) Trusting and Believing In God – Since becoming diagnosed with epilepsy my relationship with God has grown stronger than it has ever been in all my life. Growing up in a Christian home, marrying an amazing Christian man with an incredible Christian family, I can say what a tremendous blessing to be immersed in God’s love. Whatever His plan is, I know that I can have complete trust and everything will be okay.

4.) Standing Together With Family, Friends, Fellow Epilepsy Fighters, and Supporters – There are so many people who continually inspire, motivate and encourage me on a daily basis throughout this journey. It is a beautiful sight to see, us all united in strength rather than shattered and scattered in defeat.

5.) A Daily Reminder To Myself “Today you will rise above epilepsy!” It is so important what you tell yourself. Self speak will either hurt you or help you. I never want to tell myself anything that will hurt me. I do my very best to avoid this. I’m not perfect. No one is. However, this phrase right here is a great way to start a day.

What methods do you use to stay positive when life decides to take an unexpected turn down a rocky road?

Share in the comments section!

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

4 Comments

  • Heidi

    God has a plan. Through this experience I’ve met an incredible number of people with seizures, just like me. I’ve said it before, but epilepsy is so much more common than you’d ever believe. Although it may put bumps in the road, you get to meet phenomenal people at the same time. On an ironic note, I’m leaving in a few minutes to go play tennis with a kid who is about to start high school and is a little nervous. Seizures have been knocking on his door, unfortunately. Meds aren’t working much anymore and he’s lost nearly every friend. I met his mom at an epilepsy conference a few weeks ago. Fortunately, it’s a small world and my mom will be his Vice Principal and a good friend (also with seizures and a seizue dog) will be his chemistry teacher. Looking forward to meeting him. On a last note, thank you for always being awesome, TEN!!!

    • Tiffany Kairos

      Yes God most certainly does have a plan Heidi. 🙂 I myself have met quite a number of people with this same condition, as myself. It’s astounding how common it is and how little it is discussed among the public. We as advocates, and supporters must continue to carry the torch to help those see the light. You are surely right about that. 🙂 Those bumps in the road are climbing blocks of lookout points to all of the incredible people overcoming and triumphing. That sounds like a lot of fun Heidi. 🙂 I’m sure he will love that. I know how this boy must feel, as I live with Refractory Epilepsy and in the beginning, I watched as all friends walked away. Medications worked for a while and eventually stopped. Yet I live in faith. 🙂 Remind him that in all he does, live in faith.

      How very nice of you! 🙂
      God bless!

  • Susan

    My son Matt suffers with epilepsy following a hit to the head with a hockey stick. We do a daily positive journal for Matt for him to look at the good in each Day. For me as one of his caregivers, I dont scream each time he has a seizure now…that seems to help too 🙂

    • Tiffany Kairos

      Hi Susan 🙂 I’m sorry to hear that he endured a hit to the head with a hockey stick. That’s terrible. 🙁 A daily positive journal is an excellent idea! I’m certain this helps him so very much. Being a caregiver is such a rewarding job. Those of us who are fighting epilepsy are comforted by family, friends and caregivers who show support. 🙂 Take care and God bless!

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