Hearing what the doctor had to say regarding what I could expect living with epilepsy for the foreseeable future, participating in countless tests and hospital stays, going through the motions as I climbed up the mountain of milestones only to tumble back down and turn around to climb again and again, medicines worked, medicines failed, other medicines worked only a percentage of the time yet not completely. The journey of one who lives with epilepsy is rigorous and will test a person, even family and friends on many levels. I had almost lost my life the day of my seizure car accident. Becoming diagnosed with a difficult medical condition was the hardest thing that I had ever been faced with in my life.
However, there was so much that I didn’t expect when I received my diagnosis of epilepsy.
I can say with certainty, that becoming diagnosed with epilepsy humbled me. I didn’t consider myself to be a proud or arrogant person no, however, I became much more modest in behavior, attitude and in spirit.
Knowing how close that I was to death, and the cross that I now had to bare, it opened my eyes to how grateful that I am for all of the people that are in my life. God absolutely. My husband and my family most certainly. Grateful for each and every breath I take. Every glimmer of sunlight that shimmers through our curtains in the morning declaring God has blessed me with another day of life.
Being told that I was going to have epilepsy, seizures for the foreseeable future in my mind was not the be all end all. The line was not going to be drawn there telling me I could not cross, I could not live a full and productive life (Which would have been nice if my doctor would have thrown that line in). I became determined to learn all that I could about this condition that sought after my brain, what I could do to overcome it and not only that, share with others all around the world. I, with the help of my husband created The Epilepsy Network (TEN) Organization which continually grows every day.
A Greater Relationship With God
I grew up in a Christian household. Went to church, read the Bible. Was even baptized at the age of thirteen. However, as I grew older I grew more and more lost spiritually. Grew with more and more questions about God. Rather than me finding God, God found me I would say, as the Bible verse says “Come to me, all you who are weary and burdened and I will give you rest.” Matthew 11:28 I decided to devote my life to knowing my Heavenly Father and becoming a true follower. Both my husband and I got re-baptized and have since become members of an incredible church where we’ve both grown in our walk with God unlike ever before. Embraced by our brothers and sisters in Christ, it is an awesome feeling.
Having being told that I have epilepsy, some might assume, an “All about me”complex would soon follow. As a matter of fact, I developed an overwhelming selflessness part of me that brought me great joy. Offering help to others, whether it be lending an ear, a word of advice, spending time, or a hug of support.
My loving and dedicated husband Chris helped me to have a change of mindset. Not only when it came to epilepsy as a whole, but I took our conversation to heart for life. Each of us living with epilepsy and/or caring for someone with epilepsy, have a rocky road to travel. No one ever said that it was going to be easy. However, should we change our mindset to positivity and optimism no matter what we face, we will have the ability to face whatever storms may come.