Grand-Mal (Tonic-Clonic) seizures are like earth quakes and thunderstorms intertwined. However, the core of this massive effect is experienced from within. For me, I am only given seconds to know that it’s coming before darkness washes over me. Where I go, I have no idea. I have no idea the look on my husbands face. How frightened he must be feeling. How long I’ve been gone. Where I go, time doesn’t exist. Thoughts don’t exist. An escape route doesn’t exist. I slip into a void filled with fear. Filled with one final thought. “No! Not again! Please God!” Every time, the final thought is never any different. I pray to God to save me from slipping away again. Even so, I remain vigilant that I will go through what I must and remain strong. Remain faithful that a cure will come along for me and others like me. Awakening is like a rebirth. Every muscle in my body is like water. I try to rise only to fall back down. My vision is like looking up to the surface from underwater. Bright, blurry and shapeless. My thoughts are scattered like millions of Scrabble tiles. I can’t seem to gather the letters to form words or sentences. The immense ache in my head is worse than any migraine I’ve ever known. How can a head ache so badly, I wonder? As if I had picked a fight with a heavy frying pan and lost. Almost every time, I am rendered this way for days. Sometimes 2 days. Sometimes 3 days or longer. Each day gradually receding the toll that my body takes. I’ve come to devise a battle plan for after the storm since being diagnosed. Every so often tweaking this plan for what works and what doesn’t work. For anyone reading this, perhaps this can help you or the person in your life who experiences seizures. I couldn’t get through the aftermath without my trusty heating pad. A microwavable herbal heating pad, I find to be best. Get plenty of sleep while the heating pad rests on your head. Sleep is so vital because your body needs to regain strength from having endured so much tension and electrical surge. For the days of recovery, water and decaffeinated tea are the only liquids I consume. Caffeinated drinks are meant to stimulate your brain and the only thing your brain needs is nutrients. As my muscle groups regain strength, I never go anywhere without the assistance from my husband. Don’t be embarrassed to ask for help. I might suggest compiling a list of what helps you. Specially designed for your needs and comfort.
My comfort package list:
Heating Pad (Microwavable/Herbal)
Water & Decaffeinated Tea
Chicken Noodle Soup
Fresh air (To keep body temperature regulated)
Plenty of sleep to allow body to regain strength
Anyone is welcome to use my package list to help them! Modify it to your liking and I hope that it helps you as much as it helps me!
I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!