Epilepsy

Miracles Within Epilepsy

A miracle is defined as:

An event that is considered to be the work of God.

In looking at the title of my article here, some might be thinking, “What miracles could possibly be extracted from having seizures or being diagnosed with epilepsy?” Seizures and/or an epilepsy diagnosis, is terrible, awful, devastating, heartbreaking. I could go on and on. However, if you reach down into the soil of the circumstance, not looking back and refusing to respond to the negativity that swirls about, there you will find miracles.

A tree has long, strong roots that travel far down into the soil and feed the tree nutrients to keep it growing tall and mighty. They don’t spend their days on the surface. They don’t give up.

We who are diagnosed, family, friends, caregivers, supporters, are the strong roots that must continually feed our mind, body and soul, nutrients to keep growing mighty in our journey to a cure.

What are the miracles that I’ve found within my personal epilepsy journey? There are countless miracles that I’ve encountered within epilepsy. Below, I’ll share a few of those with you:

At the age of sixteen years old, in the middle of the night, I experienced my first grand mal seizure. There were no warning signs. No out of character behavior leading up to going to sleep. It was a typical teenage kind of day. Wake up, school, homework, might’ve called my best friend on our gigantic cordless phone under the bed, but there were no indications that a seizure was drawing near just a few hours later. Thankfully, my little sister and I shared the same room. She witnessed me repeatedly striking my head against the bedroom window. My sister wasted no time waking my mother who called the paramedics and with emotions churning tornadically, held me. I was placed on epilepsy medication for a time, my single seizure had been tamed and I was eventually weaned off.

The Miracle:

My sister ran for help. So often, I hear of heartbreaking cases of SUDEP (Sudden Unexpected Death in Epilepsy) or Status Epilepticus (when a seizure lasts too long or when seizures occur close together and the person doesn’t recover between seizures). I thank God that wasn’t me. Though my head repeatedly struck the glass of our bedroom window, I did not suffer any brain damage nor did I break the glass and injure myself. My single seizure had gone dormant and I was able to enjoy the remainder of my teenage years without seizures getting involved in the mix.

Six years later, at the age of twenty-two, while driving to purchase birthday and Christmas presents for my newlywed husband and family, I experienced another grand mal seizure. Wrecking my car. Crashing into fences and eventually colliding with a tree. This time, I would be diagnosed with epilepsy. This time, seizures were going to be a frequent visitor in my life. This time, life would change drastically. This time there was plenty of testing and answers. I have epilepsy for unknown reasons,

In about 60 percent of epilepsy cases, there is no known cause.

and my official diagnosis, after numerous tests, medications and medication adjustments, would be Refractory Epilepsy.

In the beginning of my diagnosis, I struggled to find the miracles. I could not find a single one because a vale of depression, anger and reminiscing days prior to my diagnosis stood before me. With relentless prayer, loving help from my spouse and family, that vale was torn away and miracles washed over me like a cool tide. Breathing hope and faith into my heart, mind and soul.

The Miracle:

I survived the car accident/seizure. I am alive. I am so grateful to be alive because it could have been much worse. I may have lost my car, job, our very first home as husband and wife but I still have what matters to me the most. My Father in Heaven, my spouse and my family. I can always be assured that they will be with me through the journey. My devastating diagnosis became a blessing in disguise as my calling was revealed. My husband and I soon began our organization, The Epilepsy Network (TEN) for those diagnosed, families, friends, caregivers, anyone affected by epilepsy to come together as a community to learn and share their experiences. I began to write about my journey living with epilepsy and officially became an epilepsy blogger.

If you believe that an unfortunate circumstance cannot reap any miracles, try taking a few moments to reflect and turn your perspective around. I’m not going to tell you that it’s easy but it is accomplishable. For every negative comment that swirls about, remember that you are a strong root that must continually feed your mind, body and soul, nutrients to keep growing mighty in the journey to a cure.

What miracles have you found within your epilepsy diagnosis or seizure? If you’re a family member or friend, how about you?

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

6 Comments

  • Robert Poloha

    Well done to you Tiffany! I have the epilepsy too! And I fully agree – a work of God! For a long time I thought that I was to be healed from it – but since meeting Lowell, and so much falling into place this last year, I know God has a purpose for me with my epilepsy! Are you going to be at Disneyland in November? If so, then I would love to meet you there! I would love to speak with you and get to learn more! God bless you,

  • Lisa

    My kids are healthy. Not only that, I think with them growing up with a mom with epilepsy, that seems to change constantly, they have been blessed with a few special traits. They are patient (around seizure issues anyway). They are helpful , kind, and understanding of others. They do not judge others problems like others. They see that not all disabilities are visible and to love others for who they are .

    • Rhonda

      Lisa, this was very encouraging for me to read! We are in the process of adopting and so often I doubt whether I’ll be able to be a good mom to my child(ren) since I have epilepsy. Thank you for sharing.

  • Rhonda

    Thank you for sharing your epilepsy miracles. It is hard to find joy in the day-to-day of epilepsy, but this post and your outlook has encouraged me to share my epilepsy miracle:

    When I was 17, I got up early to take my bath before school. As I sat in the bathtub full of water, my arms were jerking as they had sometimes been doing, upon waking, for the last number of months or maybe even longer (we’d never gone to the doctor about it, not being worried about it). This time my arms seemed to be jerking quite a bit and I held them to myself and told myself I’d be okay, as my mom had told me before. The next thing I knew I was lying on my back in the hall outside the bathroom door with paramedics and family gathered around me, my mom frantically saying “you almost died!!” Thankfully someone had covered me with a towel!

    The miracle that had happened in the meantime: Usually no one else was up in the household at that time in the morning. However, that day my dad had gotten up early as well. He heard a splash in the bathroom and thought it was odd, even though he knew I was taking a bath. He came and knocked on the door and asked if everything was alright. When he got no response, he unlocked the door and started to slowly open it, rightly figuring that if everything was fine, his teenage daughter would yell at him shortly! He then saw me face-down in the water. He immediately stepped in, hauled me out, and started trying to resuscitate me. He also yelled for my mom, who was sleeping, to call 911. If God had not woken my dad up early that day, and caused him to get up and start his day, and to hear that splash, and to think it was strange, I might’ve drowned before coming out of the seizure. If that had happened, I think I might’ve gone to hell, because although I thought I was a Christian, I don’t think I was actually saved until about ten years later.

    I was put on seizure medication and didn’t have another seizure until shortly after my husband & I were married, 5 years later. Since then I’ve been diagnosed with Juvenile Myoclonic Epilepsy and I’m quite confident I also have Catamenial Epilepsy. I’m now 34. Although I have a lot of personal struggles with my epilepsy and seizure medications, I’m thankful to Jesus for saving me, both physically and eternally!

    • Tiffany Kairos

      Wow Rhonda what a journey you’ve had, I thank you for sharing this with me and yes, I know that at times it can be challenging to find joy in the day-to-day of living with epilepsy however, I am so pleased that this post has given you encouragement to share your miracles! Praise God that He did indeed save your life in all ways! 🙂 We have an amazing Father who truly loves us and only wants the absolute best for our lives.

      All the best to you!

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