“When you believe in a thing, believe in it all the way – implicitly and unquestionable” Walt Disney
Until their only child, Sofie, developed epilepsy, Brad Levy focused on his children’s retail and consulting business and his wife Candy worked representing composers and volunteering with their local special needs group and Holocaust survivor programs. When Sofie continued to battle seizures despite many medications, and the opportunity was presented to have brain surgery, their passion changed to helping their child, and now, others like her, with epilepsy. Brad and Candy sought several opinions and consulted renowned neurologists nationwide. They then met Dr. Diane Stein, doing what she loves to do: speaking to groups about epilepsy. Dr. Stein is a board certified pediatric neurologist, specializing in epilepsy and autism. Between her passion for children and theater and raising awareness for epilepsy, she often speaks at support group meetings.
Together, Dr. Stein and Sofie’s parents banned together leading to Sofie’s cure: The Pediatric Epilepsy Surgery Program at UCLA Mattel Children’s Hospital with Dr. Gary Mathern and Dr. Raman Sankar. Brad and Candy brought their Rabbi and Doc to UCLA on the big day and prayed for the surgery to be Sofie’s cure. Brad added the promise to ensure others would have opportunities like his daughter, by luring Dr. Stein away from her medical center career, and building Dr. Stein’s private medical practice. Both of these things happened and 6 years later Brad is the practice manager for Dr. Stein, as well as general manager of Full Spectrum EEG, a full service EEG lab catering to kids with special needs. The Levy’s are ecstatic that Sofie is 6 years seizure free! Sofie is currently in 9th grade, mastering American Sign language, and doing lots of art. Sofie has a unique connection with younger kids and plans on being a pediatric Neuro EEG technician and taking over EADDL someday!
Together they continued to focus on their passions for epilepsy awareness, volunteering with youth and elderly, ensuring others achieve opportunities for great epilepsy care by creating Epilepsy Awareness Day At Disney Land Resort November 7, 2013! On November 8th 2013 Candy volunteered to continue as the coordinator for Epilepsy Awareness Day At Disney Land Resort 2014 and beyond. As a family, they are determined to make the 2015 event the biggest gathering of epilepsy support ever!
Becoming Aware Of Epilepsy Awareness Day At Disney Land Resort
When I had become aware of Epilepsy Awareness Day At Disney Land Resort for the very first time, having seen the astounding turn out of those on the journey of epilepsy, advocates from around the country and around the world even, family and friends, organizations and foundations, I was in complete awe. Reading stories, sifting through pictures of past events, watching videos and interviews, what a grand occasion I would surely love to be a part of, I thought to myself. Not only as a journeyer, I too wanted to provide education and awareness for those who perhaps may be unaware of the tremendous impact of epilepsy through our very own organization The Epilepsy Network (TEN), stand alongside my brothers and sisters in epilepsy from near and far, take this incredible journey across the country with the love of my life who has been with me every step of the way and the Co-Founder of The Epilepsy Network – my husband, Chris. The more I began to look upon the idea of Anaheim California for the event, the more the road began to stretch further and further out ahead of me as I realized the cost of such a trip for the both of us, yet wanting to not have a doubtful mind and keeping faith at the front, I kicked doubt aside and settled on the fact, that if God wants it to happen, God will make a way.
The Importance Of The Dream
- To provide education and awareness for those who may be unaware of the tremendous impact of epilepsy through The Epilepsy Network (TEN)
- To stand alongside my brothers and sisters in epilepsy from near and far.
- To take this incredible journey across the country with the love of my life who has been with me every step of the way and the Co-Founder of The Epilepsy Network – my husband, Chris.
- To have a lasting memory to share with (Lord Willing) our children one day about unity, overcoming, strength, and willingness to rise above epilepsy.
- To meet and personally thank the incredible advocates, journeyers, organizations and families that I have greeted along the way as we continue our way towards a cure as one united force.
Since becoming aware of Epilepsy Awareness Day At Disney Land Resort, I have made it my personal prayer to one day bring us out to California on the very day of the event. Some how some way if it is His will. It is only human nature that doubt occasionally taps on the door every now and again wondering if it should ever come to be but I know faith prevails because God is good! In his timing, not mine.
So I will say this. Epilepsy advocates, organizations, journeyers, families, I will see you Lord willing, in California very soon! It would be a dream come true to be right there with each one of you.