I often reflect back on times in which I would say to my husband or to family that they would never understand what I was going through because they were not living my condition. They were not walking the road I walked. So often, I am certain many of us living with epilepsy do say this to those we love and care about the most out of frustration and hurt unintentionally. However strength and perseverance would prevail and this prevalence would bring light and joy to my loved ones eyes. As it did to my own.
Wonderfully, there is so much that loved ones can learn from someone living with epilepsy than just to prevail. While taking a few moments to enjoy the Saturday afternoon sunshine, I reflected on this very thought.
Here are a few things all loved ones can learn from someone living with epilepsy:
- Help. When you live with epilepsy, your daily life might very well depend on the support and the help of your spouse, and/or family. Without them we could possibly be risking danger. Those of us unable to drive cars, wouldn’t be able to get to where we needed to go (Doctors appointments, Pharmacy etc.) Without the help of our loved ones, we would be putting ourselves at a very big risk of harm. Unfortunately, along the way of getting well, we somehow lose the desire of wanting to accept any sort of help. Accepting help becomes a sort of frustration. The same holds true for asking for help.
- Always Say I Love You. When you live with epilepsy, every single second instantly becomes precious. Every second. You know it in your heart. That fact is forever etched upon your heart and can never be taken away. Never ever miss a moment to tell those you care for the most that you love them all the time. Even if they already know it. Those three words couldn’t be more special. More valuable. More precious than anything in this world.
- Be On Time. When living with epilepsy, the alarm goes off, the medicine goes down. For some, this could be one time a day, two times a day, or multiple times a day. Late on a dose, you’re gambling a seizure. Miss a dose, risk a seizure. It’s vital to be on time. Every time. Every day. Your life depends on it.
- Smile. When living with epilepsy, it’s not always the easiest thing to do but we do it anyhow. We smile. We smile because we believe in better days. We hope for better days. We have faith for it. We yearn for it.
- Hugs. So often, my husband comes over and gives me the biggest warmest hug in the world. I mean a real and honest hug that comes right from the heart. You can truly feel that it comes right from his heart. My reaction to it is the same each time. I melt straight into the hug as if everything had just been made perfectly fine again. From no one else do I get and give such honest hugs in the world anymore, which makes me a little sad I must admit. Hugs are the best show of love to those you love. If they’re a good friend, lay down the handshake and give a hug.
- Open The Book. Oftentimes, I find myself drawn to The Bible in times of need along my journey. As a matter of fact, in all times! God is my strength and my rock and my refuge and I do not fear this condition that I face because of my Lord and Savior. Without Him and the many great words of wisdom and encouragement that I draw from The Bible, I would be quite lost and not as strong as I feel that I am today.
- Live A Dream. Just because you have epilepsy, doesn’t mean epilepsy has to hold you back from living the kind of dreams that you want to live. Think of the many actors, musicians and athletes past and present with epilepsy who defied their diagnosis and pursued their dreams. Given, some ambitions might require some time and thought, it’s important to have dreams and goals. It’s important to pursue them in a healthy fashion, in faith and belief that you can and will succeed regardless of your condition.
At the end of the day, it’s all about being able to put the breaks on not worrying so much about life and not living in the past and not holding on to things you can’t change. We don’t have the power to control or predict it so let’s just live it to the best of our ability.