Epilepsy

5 Things Not To Be Angry At Living With Epilepsy

Becoming diagnosed with epilepsy is a life-altering event. Epilepsy does not care your age, your race or time within your life. This condition can happen to anyone. Some are welcomed to the world with epilepsy. Some are introduced to epilepsy at a young age. Some are blindsided at an older age. When diagnosed with epilepsy it is vital to not allow yourself to succumb to anger. To not abandon all of our positive emotions and adopt the negative emotions. Anger is equivalent to quicksand, only dragging you down rather than lifting you up. It’s an easy path to travel that many of us have taken several times. However, the path that puts us to the challenge is the one that motivates us to overcome.

We must recognize and avoid things that cause us to feel angry as we live with epilepsy. What are these things?

  • Avoid being angry at people without epilepsy

It’s easy for anger to brew within at anyone and everyone who does not live with epilepsy. However, being angry at people without epilepsy is ineffective. It does no good to stir up anger or take out anger upon those who do not have the condition that you have. You have an opportunity to educate, advocate and possibly help an individual who knows someone living with epilepsy.

  • Avoid being angry at family and friends

Family and friends are a diagnosees greatest support. Offering love, care, advice, and freedom from judgment. Living with epilepsy, routine medications, visitations to the doctor, testing, this can be daunting. For some, depending on family and friends to get to and fro, a consistency of questions if you’ve taken your medication or if you’re okay can feel frustrating. Even so, it’s important to remember that there are many blessings to be found, even though the feeling of discouragement lingers. What a blessing to have the love of family and friends. What a blessing to be cared about. What a blessing to be alive.

  • Avoid being angry at the doctor who diagnosed you

Certainly, no doctor is thrilled to open the door, look you in the eyes and diagnose you with epilepsy. It’s necessary to be aware in order to take the crucial steps forward toward finding a cure. Too, in order to avoid each trigger that aggravates your seizures. To be left in the dark regarding your condition would simply be cruel. To be given the ability to know all that you can regarding your condition is power in your hands.

  • Avoid being angry at yourself

Oftentimes, when diagnosed, some wrestle with many questions within themselves. “Did I do something to cause this to happen?” “Was it because of (fill in the blank) that this has happened?” “Could I have done something different to avoid this?” “I deserve this because I (fill in the blank).” An epilepsy diagnosis is not your fault. Don’t berate yourself with grief, guilt and blame. Doing so plants seeds of sadness, depression and halts you in place along your journey of overcoming. Allowing epilepsy to be the ruler of your life.

  • Avoid being angry with life

So often, when diagnosed, many become angry with life. Yearning for normality. Longing for things lost. The ability to drive a vehicle. The ability to work a job. The self-esteem to date. Wellness to start a family with their partner. On and on. The greatest thing one can do is to not lie focus on things lost but things right in front of you and things to come. Most importantly, the fact that you are alive. You are alive to fight back.

There are countless lives that have been silenced at the hands of epilepsy and each of us not only fight for ourselves, we fight for the lives that have been dimmed. For the families and friends who stand alongside around the world. For the doctors and nurses who relentlessly battle back against epilepsy.

Life, though a challenge, is still and will always remain a beautiful and wonderful gift.

Send the negativity of anger that you feel in your epilepsy diagnosis packing and embrace the positivity of optimism, hope, and faith along your epilepsy journey.

If you believe you’re alone today, you’re not. Epilepsy is outnumbered by the sheer number of people who have the desire to put an end to the condition. To help the world have a greater understanding and those diagnosed know that they are the rulers of their lives. Epilepsy does not rule them.

I am a happily-ever-after wife, an Epilepsy Diagnosee, Advocate for Epilepsy Awareness (The Epilepsy Network), life lover & Christ inspired! Life is a journey and I'm loving every moment of it. Even the bumps in the road!

7 Comments

  • salina

    One thing my father has always told me living with epilepsy, is not to feel sorry for myself it’s hard sometimes, but I always make it through.

  • Martin Vause

    I have had three seizures over the last four years the last one being the worst in January 2016 when I lost consciousness for some time and woke up in a hospital. Calcium deposits on the brain and some degree of atrophy were found on CT & MRI scans. I have found that by radically changing my lifestyle to reduce stress (Not Driving) I have been able to reduce the number of seizures. Now I only suffer from the prejudice of some thinking me lazy or just drunk when I had a bad seizure. My energy levels are much less than before my worst seizure and my memory seems impaired slightly. The longer I go without a seizure I am sometimes judged as 100% fine by others who maybe think I should just ‘snap out of it’ I should wear a badge that says ‘remember my epilepsy’

  • Rhonda

    So many points in here hit the nail on the head for me. Anger at people without epilepsy and family. My sister was diagnosed with epilepsy before me; however she outgrew her type while my type is permanent. This is something it’s easy for me to be bitter about if I let it. Frustration at people who care. I have gotten quite irritated at my husband for regularly checking if I’ve taken my meds, or for being very protective. Really I should be thankful for how much he cares. Angry with life; yearning for the wellness and normalacy of other people to be able to start a family, travel, be awake whenever, eat whatever, etc. It’s very easy to be discontent. Only Christ Jesus can help me with this!

  • donna

    I have lived with epilepsy for 37yrs i now tell people i have the condition it was my secret…..i have been suspended from school ,arrested for being drunk several times over the years and allowed these things to happen all because i didn’t want anyone to know the real reason for my strange behavior..my behavior it seemed better to be preceved as being drunk or on drugs than to admit the truth of my true condition…..by the time i admitted it most didn’t believe me as not enough is known. And the misconception of what types of seizure we can suffer and no two epileptic s are the same….learning triggers and medication the key,other people’s ingnorance and disbelief s and prejudices only increased the risk of a seizure….a nightmare ,its much better now more people are aware ,it takes away that trigger at least……i no longer get upset i except im not alone…

  • Lisa Hamilton

    Yes, yes, and YES! I was diagnosed with epilepsy after a severe traumatic brain injury in 1996. I had graduated from University only 4 months prior after working for 12 YEARS towards my degree! I decided how I should approach life from day one.
    – Be grateful I understood WHY I had epilepsy,
    – Be positive towards my recovery and celebrate each success, no matter HOW SMALL,

    I had suffered from a severe depression prior, though it was not diagnosed, an I only recognized it for what it was AFTER my brain surgeries relieved me of my tonic clonic seizures. I suddenly went from being inconsolably depressed with bouts of mania to stable and happy for the first time I could EVER REMEMBER. I now believe I have bipolar disorder instead of major depression. The TBI gave me an internalized ECT (shock therapy – sometimes people with bipolar or major depression are prompted to have tonic clonic seizures via electricity as a therapeutic tool.) It sounds barbaric, but it has been shown to be clinically significant. I have never received this treatment, and would have refused it, had it been offered. It’s simply a side effect of my epilepsy that has presented itself I feel I can speak about. Now that my surgeries have controlled the worst of my seizures, my mania has returned and I recognize it for what it is.

    I had an epiphany!

    My blog last year was survivalday416.com

    Best, Lisa Hamilton

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