5 People You Meet Along Your Epilepsy Journey

“We met for a reason, either you’re a blessing or a lesson.”

You’ve been diagnosed with epilepsy. A diagnosis is a life-changing event. Epilepsy doesn’t always present itself to the world and it can go unnoticed by family, friends and the public. With epilepsy being a part of your every day life, you’re bound to meet a variety of different people along your journey.

Who are 5 people you are likely to meet along your epilepsy journey? Take a look:

1.) Those who claim you are “FAKING” epilepsy.
Having epilepsy is a serious medical condition. As the person living with epilepsy, you know exactly how difficult and challenging living with this condition is. Sometimes, family, friends and the public may not. When a person claims that you are faking epilepsy, it can be very hurtful and even frustrating. Don’t be discouraged by inappropriate and disrespectful comments. Rather be motivated to overcome and be the better person.

2.) Those who are unfamiliar with epilepsy yet have a long list of ways they’ve heard puts an end to seizures.
The grapevine. The mighty grapevine of information. We often hear so much information through the grapevine. Yet cannot always be certain what is fact or fiction. It’s important to hear and read information through the grapevine with a grain of salt. Not everything you hear or read is accurate. It’s always important to speak with your doctor before trying anything.

3.) Those who “ACT” interested to learn about epilepsy yet in fact have little interest.
We want to educate family, friends and the public about the condition that we live with so as to eliminate the stigma and the fear. So what do we do? We talk about epilepsy. We talk about living with epilepsy. How epilepsy personally effects our lives. For some, people are engaged and eager to learn all that they can so that they can help make life easier. For others, since the condition doesn’t personally affect them, it quickly becomes a topic of little interest, which is rather unfortunate to witness for those affected by epilepsy.

4.) Those who completely understand your journey.
It is very easy to feel alone within your journey. Especially if you’ve never met another person living with epilepsy. A very important thing to remember is that there are people all around the world that feel the exact same way that you do. Who completely understand your journey. There are a multitude of communities, groups etc. to connect with. Your doctor can even help connect you with a local group to meet people who understand all that you’re going through. Within these communities, there are people who’ve been diagnosed, families and even friends of who are broken and have been made whole again. Whatever point you are at right now, you might find someone or multiple people at the very same point. There are people at all different points within their journey. It’s within these communities that you become motivated, inspired, uplifted, renewed, and even strengthened. You have the opportunity to provide the same to others too.

5.) Those who are filled with wisdom and inspiration through and through.
It is always good to have wise and inspirational friends by your side. To encourage you and fill you with great wisdom especially along your journey with epilepsy. The wisdom of someone who’s walked through life for a longer period of life is invaluable.

Having diverse people in your life for the journey is a completely positive experience. This can pave paths far and wide of viewpoint. To hear the journeys of another opens the door for avenues you may have never expected. It could very well be the beginning of a lasting friendship and support.

Experiences with one another help us to realize that we are indeed not alone in this fight, along this journey. We are not alone as diagnosees, families, and friends.

No matter who it is we meet along the way, whether good or bad, allow it to be a positive, learning situation. You are your greatest encourager. Always be the best you can be. You never know. You might just encourage someone else along the way!

Have you met these people? Who are people you’ve met along your epilepsy journey? Share in the comment section!

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